You showed up for #MillionsMissing, now is the time to show up before our federal agencies to demand that they take urgent and strategic action for people with Myalgic Encephalomyelitis. The Chronic Fatigue Syndrome Advisory Committee (CFSAC) will hold its bi-annual meeting on June 20th and 21st, and we need to fill up the time
by Kim Gurav and Susan Cole #MEAction Scotland volunteers have been called before the Scottish Parliament’s Petitions Committee on Thursday, 7th June to give evidence on their petition to review treatment of ME patients in Scotland. The petition has received 7,000 signatures, and calls on the Scottish Government to invest in biomedical research into ME,
Occupy M.E. describes the NIH’s current plan to address the crisis of Myalgic Encephalomyelitis as “do a little and wait.” Blogger Jennie Spotila describes the agency’s plan, which was found buried in the NIH 2019 budget request sent to Congress, as follows: NIH is going to wait for the new Collaborative Research Centers to lead
DePaul University is asking the patient population to fill out a survey to better understand the effects of post-exertional malaise (PEM) in people with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome. The patient community aided in the development of this questionnaire to more accurately define and measure abnormal responses to physical and/or cognitive exertion. “We are
If you are in the UK, please email your MP asking them to sign Early Day Motion 1247. What is an EDM? Early day motions (EDMs) are motions submitted for debate in the House of Commons for which no day has been fixed. As there is no specific time allocated to EDMs very few
Signatures for this letter are now closed. We are planning to deliver it soon and will keep the community posted on any and all updates. On May 12th, the #MillionsMissing will protest in over 100 cities worldwide, demanding real investment in research funding and clinical education for myalgic encephalomyelitis (ME) from our government. Below is
Join the protest from your home. Here are several ways to take action.
Please support our petition! #MEAction Scotland volunteers have submitted a petition to the Scottish Parliament. Anyone from any country can sign! The petition calls on the Scottish Government to undertake a review of the treatment of people with ME in Scotland. The aims of the petition can be summarised as follows: Investment in
Shoes have been a powerful, unifying symbol for #MillionsMissing since the first global protest in 2016. Demonstrations across the world have displayed rows of shoes to represent what people are missing from their lives due to myalgic encephalomyelitis. The haunting image of rows of shoes symbolizing the effect of this disease on people’s
