Featured actions Archives

Suffering the Silence Campaign for M.E.

August 9, 2015 No Comments

Write “M.E.” on your left hand or forearm (if you do not want to use marker on your skin, you can improvise with a piece of paper as many have done). Cover your mouth with your hand and make sure to look into your camera lens. Upload to Twitter or Instagram with the hashtags: #sufferingthesilence #MEAction and #severeme. If you are on Facebook, you will need to post to The #MEAction Network page AND use the hashtags above.

Take the funding equality petition to the streets

August 6, 2015 1 Comment

The US funding equality petition has over 4,000 signatures. We still have a lot of work to do to get to our goal of 50,000 signatures nationwide. As we learned from the Dutch campaign, the only way to get to get large numbers is to take the petition into the streets. Help us increase signatures for

U.S. Funding petition: help us target key states

July 24, 2015 6 Comments

Is your senator a member of the Health, Education, Labor and Pensions (HELP) Committee? Do you have friends or family living in the following states? SIGN AND SHARE YOUR STATE PETITION ALASKA * COLORADO * CONNECTICUT * GEORGIA * ILLINOIS * KANSAS * KENTUCKY * MAINE * MARYLAND * MASSACHUSETTS * MINNESOTA

Tell Congress We Need An ME Champion

July 23, 2015 2 Comments

Use the easy one click letter to send Llewellyn King’s article in the Congress Blog looking for a congressional representative to take on the campaign for ME.

Mike's EU Marathons: Raising Myalgic Encephalomyelitis Awareness across Europe

June 3, 2015 5 Comments

28 Marathons for Myalgic Encephalomyelitis Awareness and Research I’ll be running a marathon in each of the 28 EU member countries to raise awareness and much needed funds for biomedical research into ME & for the charity Invest In ME I’m aiming to raise funds and awareness for biomedical ME research across the 28 countries

Take The Chilli M.E. Challenge

May 16, 2015 1 Comment

Take The Chilli M.E. Challenge. The Chilli M.E. Challenge is an advocacy initiative started by four girls who met on Facebook and decided that something had to be done to spread awareness to those that don’t have ME and also to raise much needed funds for biomedical research for Myalgic encephalomyelitis (ME)/ Chronic Fatigue Syndrome

Crowd funding for The OMF ME/CFS Severely Ill Big Data Study

May 13, 2015 1 Comment

As part of our OMF End ME/CFS Project, this study will conduct a comprehensive, “Big Data,” analysis on severely ill ME/CFS patients with the goal of finding sensitive and distinctive molecular biomarker(s). Very little research has been done in the bedbound. severely ill patients because they are hard to reach. By looking at the simple

The $10 Challenge For Columbia CII ME/CFS Research

May 10, 2015 No Comments

The Microbe Discovery Project began as a patient-driven crowdfund to raise funds for world-class researchers Dr Ian Lipkin and Dr Mady Hornig at Columbia University’s Center for Infection and Immunity (CII), New York. Research into ME/Chronic Fatigue Syndrome is sorely needed and there is a paucity of research into the illness. Patients raised a whopping

Category: Featured actions