The #MillionsMissing protest is full-steam-ahead: we’re mobilizing in Washington D.C., Seattle, San Fransisco, and Dallas; we’re revving up our engines in other cities all across the United States, our friends in other countries have pitched in, and the enthusiasm has reached an all-time high. However, if you’re sitting at your computer holding five spoons for
The Blue Ribbon Foundation will have this offer available until May 19th, and will send out all orders on May 20th to reach the state representatives’ desks on or by May 25th, in a virtual protest. If you are not able to physically attend either of the protest sites, this is an excellent opportunity to make your voice heard.
How many of us are out there with ME/CFS? Put yourself on the map so that we can show the world how many of us exist! Put yourself on the map using this website: diseasemaps.org. Simply search for Chronic Fatigue Syndrome/M.E., and then add your information. (Include name or not.) We can prove to our
#MEAction Washington is asking all of Seattle to come out and support our #MissingMillions protest scheduled for May 25 in front of the Henry M. Jackson Federal building at 915 2nd Avenue in downtown Seattle.
a may 12 project. The challenge is to get as many buildings as possible in your country to light up with one of the 3 colours used on May 12th – blue, purple or green. We want public buildings/places like City Halls, Niagara Falls and we want individual homes lit up too!
#MEAction is seeking poems to honor those around the world struggling with M.E. This call to poets is designed to complement other awareness projects taking place during May. Our goal is to proudly display the creative resources of our community and to celebrate the courage it takes to speak out about the injustices and suffering we face on a daily basis.
Web MD, the largest online publisher of news and information regarding health and well-being, has released its “latest news” about ME/CFS in an article based on the discredited PACE trials. It asserts that “British researchers concluded that a form of talk therapy, called cognitive behavior therapy, and graded exercise therapy are among the best treatments for chronic fatigue.”
Canary in a Coal Mine (working title), my documentary film about myalgic encephalomyelitis, is heading toward rough cut, an early version of the finished film. Right now, we are working intensely on the historical sections to help the audience understand not only the history of the disease but a broader history of medicine. The intention is to give
This is the first study on ME/CFS conducted by NIH in two decades. One million patients suffer from this disease, too long neglected by both CDC and NIH. It is critical that the Principle Investigators recognize existing biomedical research on the disease, as well as the results of recently commissioned studies by the Institute of Medicine for DHHS and the P2P (Pathways to Prevention) program at NIH.
#MEAction, in collaboration with the Association of People with Disability (APD) in Bolivia, have launched a campaign to raise funds for the brave individuals that are risking their lives to demand equality from their government. Our goal: raise $10,000 by Saturday, March 19th It all started 50 days ago at the main square in
