#MillionsMissing 2025: Sending Out An SOS
April 2, 2025
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For #MillionsMissing 2024, #MEAction is sending out an SOS.
Category: Events
The Year Ahead
January 23, 2025
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As we embark on the new year, we are excited to share updates about #MEAction’s advocacy projects and community programs with you! While we focus on advancing support, research, and treatments for people with ME, we’re also closely monitoring changes to public health systems under the incoming administration, and will pivot as needed to fight
You’re Invited: The Beth Mazur Innovation Prize Fundraiser
November 1, 2024
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You are cordially invited to The Beth Mazur Innovation Prize Fundraiser on Wednesday, November 13th at 2pm PST/5pm EST. Beth Mazur, who co-founded #MEAction was a kind and compassionate human being. She cared deeply about the ME and the Long COVID communities. She also cared deeply about innovation, new creative ways to solve problems that
Beth Mazur — Memorial Service and Obituary
January 10, 2024
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As many of you know, we lost a wonderful person recently. Beth Mazur passed away after battling ME for 15 years. She was the cofounder of #MEAction and a selfless beacon of hope and light for so many in our community. She demonstrated an unwavering commitment to the cause. We could not be more devastated.
Announcing: New NIH Conference Travel Scholarship for Providers and Medical Students!
October 26, 2023
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#MEAction is thrilled to announce a new travel scholarship for providers and medical students to the National Institutes of Health’s (NIH) Conference, Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID, this coming December 12- 13, 2023 in Bethesda, MD. #MEAction is providing this opportunity for one to two promising medical students
#MEAction Partners with Writers Guild Initiative to Offer Writers Workshops
October 11, 2023
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#MEAction is excited to announce we are partnering with the Writers Guild Initiative (WGI) to offer creative writing workshops for people with ME and Long COVID**. WGI has graciously donated their time to offer these writer workshops through personal mentorship with the writers of the #MEAction community! The workshops consist of three sessions during the
“#MillionsMissing is our drumbeat”
September 20, 2023
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RSVP TODAY: We are hosting a preview party for the new, virtual Home of the #MillionsMissing this Sunday, September 24th, at 12 pm PT/ 3 pm ET/ 8 pm BST! RSVP & Get Zoom Link Here We have always had to be creative in telling Our Story – the story of M.E. – to the world
Severe ME Artist Project 2023 — Gallery
July 31, 2023
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A collection of works by artists with severe ME.
”Bed activism” at the Washington Monument & A Politics of Care
June 30, 2023
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I’ve been involved in planning many #MillionsMissing actions during my time with #MEAction, but for me, protesting at the Washington Monument this past May 12th was a different—even surreal—experience. The installation of cots was so large that I could see people coming across the mall to see what it was. I would tell them that
Let’s Look at #MEAction’s Top Hits from 2022
January 9, 2023
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As we ring in the new year, it is a wonderful time to reflect on how much #MEAction accomplished in a very busy and exciting 2022! There are so many wins to share, so we decided to narrow down the list to our TOP HITS! ——————- #MILLIONSMISSING 2022: * Bringing together the powerful Virtual #MillionsMissing