Category: Community

Red graphic with white text which says '#MEAction Scotland’s November community call.' Below is a graphic of a pair of hands typing on a laptop. On the screen is nine people on a video call and there are speech bubbles on either side.

#MEAction Scotland’s November Community Call

#MEAction Scotland’s latest community call took place on Wednesday, 23rd November. People with ME from across Scotland joined four volunteers to catch up on what #MEAction Scotland has been doing since the summer. First up was feedback on a very successful #MillionsMissing event at the end of September. The main focus of that event was

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BOLD ACTION is a Commitment to Healthcare Justice for People with ME

BOLD ACTION to me, means mobilizing our community to publicly demonstrate our deep and intense—as opposed to shallow and passive—commitment to seeing healthcare justice for people with ME. It is about bringing our issues to the forefront of public consciousness and putting strong pressure on our leaders to act. Taking BOLD ACTION is both a

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Multiple pictures of people faces in red shirts behind a red overlay with a MEAction logo and the words #MillionsMissing Activism from Home in a gray box over the pictures.

#MillionsMissing 2022: Activism From Home Was Beyond Impressive

There has been so much happening since the #MillionsMissing protest on September 19th. We’ve shared some of our amazing press wins. You tuned into the live stream on Twitter. You saw the article that cover our government’s response. We are thrilled.  And we want to take a moment to acknowledge all of the amazing activism

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Red box at the top says Join us at #MillionsMissing Scotland! Then there is a picture of people gathered at a protest holding signs and wearing read shirts, some are in wheelchairs. Low bottom of the image has a red box that says New Date: Wednesday, 28th September 12:30-2:30pm

New date for #MillionsMissing Scotland

Following the postponement of #MillionsMissing Scotland, the demonstration has been rescheduled to Wednesday 28th September. #MillionsMissing Scotland will now take place on Wednesday 28th September, from 12.30-2.30pm. We appreciate this isn’t a lot of notice but we are keen to build on the momentum the event has already gained and to hold it while it

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The image is of a scientific lab with a woman in a white lab coat looking through a microscope

Protecting the Most Vulnerable: Complexities of Vaccines and Chronic Illness

It has been over a year since the COVID-19 vaccine became available, and a subset of people with myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) are reporting adverse effects from getting vaccines and boosters from all manufacturers. There are also rare reports of people without pre-existing conditions developing Long COVID and ME/CFS symptoms after getting

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A red graphic with white text along the bottom that says ‘Ask your MSPs to join us at Millions Missing Scotland!’ On the left is an icon of a laptop and the email @ symbol, with three yellow envelopes floating out of it. On the right is a photo in a white frame of a group of people outside the Scottish Parliament building, from the protest in 2017. They are wearing red ME Action t-shirts and holding posters and banners about ME. Some are standing and some are sitting in wheelchairs. A person in the centre is holding a microphone.

Ask your MSPs to join us at #MillionsMissing Scotland

Whether or not you can join us in person at this year’s #MillionsMissing, you can help to make it a success by emailing your MSP and asking them to come out, say hello and sign a pledge to support people with ME. #MEAction Scotland will be outside the Scottish Parliament to engage with as many

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Facets of ME: Travel Tips

Welcome to August’s Facets of ME! If you are unfamiliar, #FacetsOfME is a new #MEAction feature this year where we take time to explore one facet or aspect of myalgic encephalomyelitis (ME/CFS). Sometimes it is a symptom and sometimes it is a unique aspect many of us face living with ME. So far we have

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Just In Time for the School Year: A New Pediatric Pacing Guide

#MEAction is excited to share a new and much-needed resource just in time for back to school! We are so thankful to have our allies at Long Covid Families join us in developing the Pacing and Management Guide for Pediatric ME/CFS and Long COVID.  Access the New Pediatric Pacing Guide Our Pacing and Management Guide

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