Category: Community

red/orange rectangle image with the words: Apply for 2023 appear in a gray round bubble that lays atop a white box that says NIH Conference Travel Scholarship. Under the box, the words new travel scholarship for providers and medical students to the (NIH) Conference: Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID, December 12- 13, 2023 Bethesda, MD appear. The #MEAction logo is on the left hand side of the image

Announcing: New NIH Conference Travel Scholarship for Providers and Medical Students!

#MEAction is thrilled to announce a new travel scholarship for providers and medical students to the National Institutes of Health’s (NIH) Conference, Advancing ME/CFS Research: Identifying Targets for Intervention and Learning from Long COVID, this coming December 12- 13, 2023 in Bethesda, MD. #MEAction is providing this opportunity for one to two promising medical students

Read More »
Rectangle image with a burnt reddish background that features a black typewriter with lined paper swirling up out of it. The words: “#MEAction Partners with Writers Guild Initiative to Offer Writers Workshops, Weekends in November” appear in black font. The #MEAction logo is in the upper left hand corner and the Writers Guild Initiative logo is in the upper right hand corner.

#MEAction Partners with Writers Guild Initiative to Offer Writers Workshops

#MEAction is excited to announce we are partnering with the Writers Guild Initiative (WGI) to offer creative writing workshops for people with ME and Long COVID**. WGI has graciously donated their time to offer these writer workshops through personal mentorship with the writers of the #MEAction community! The workshops consist of three sessions during the

Read More »
red rectangle image with gold fireworks in each corner. #MEAction logo and the words, "State Chapter Success Stories" in white font in the center.

#MEAction State Chapters Are Making Advocacy Moves

#MEAction is thrilled to share the incredible work our State Chapters have been up to over the past couple of months! They continue to amaze us daily with their dedication and hard work to bring awareness to the ME community. Read more about their success stories: California:  The University of California has added some disclaimers

Read More »
Image is a sky blue rectangle, with an image of the #MEAction Maryland's logo that has the words Maryland State Chapter over an image of a lighthouse. On the righthand side if the image are the words, Join #MEAction's Marylans's #HelpMESenator Campaign in black font.

Join #MEAction Maryland’s #HelpMESenator Campaign

We are writing this article to share some exciting news! On Tuesday, September 26, ME advocates delivered copies of the book, The Puzzle Solver, by Tracie White with Ronald W. Davis, PhD, along with information about ME and Long Covid to Senators on the Hill. The books were donated by an individual living with severe ME/CFS in an effort to raise

Read More »
a collection of millionsmisisng pictures featuring people protesting over the years in red shirts and with protest signs. white dashses connect the photos. the words words "the Story of the #MillionsMissing" is in white font in the top lefthand corner with the #MEAction logo there. The words "Coming Soon" is handwriting font is in the top righthand corner.

“#MillionsMissing is our drumbeat”

RSVP TODAY: We are hosting a preview party for the new, virtual Home of the #MillionsMissing this Sunday, September 24th, at 12 pm PT/ 3 pm ET/ 8 pm BST! RSVP & Get Zoom Link Here We have always had to be creative in telling Our Story – the story of M.E. – to the world

Read More »
A red background with slight paper texture to it is displayed with Body Politic mustard yellow in a wave shape at the bottom. Above the background there are three white illustrations of forearms with hands in a fist rising from the bottom of the image. At the top, center is the text: We are stronger together. It is flanked on both sides by the Body Politic and #MEAction logo.

 #MEAction & Body Politic: We Are Stronger Together

Announcing #MEAction and Body Politic’s new collaboration: we are excited to announce that #MEAction will now host Body Politic’s advocacy work as a project of #MEAction. Many of you know that Body Politic’s support group has officially closed. This was a devastating loss to the community – we know so much of the Long COVID

Read More »
white rectangle image with multi-colored water colors splashed on the background. In black outlined letter the words: Severe ME Artists Project 2023. The #MEAction logo is in the bottom righthand corner.

Severe ME Artists Project 2023

#MEAction is thrilled to announce our Severe ME Artists Project 2023 that will feature work from those within the severe ME community and will be in recognition of Severe ME Day on August 8th! This project will be an opportunity for those with severe ME to showcase your artwork, whether it be writing, photography, drawing,

Read More »
On a red background the words, ​​"Bed activism" at the Washington Monument & A Politics of Care by Ben HsuBorger in white. The #MEAction logo in the bottom righthand corner.

​​”Bed activism” at the Washington Monument & A Politics of Care

I’ve been involved in planning many #MillionsMissing actions during my time with #MEAction, but for me, protesting at the Washington Monument this past May 12th was a different—even surreal—experience.  The installation of cots was so large that I could see people coming across the mall to see what it was. I would tell them that

Read More »
A laptop sitting on a desk. In the background, you can see a cup and saucer, some post-it notes and a folder. On the screen is the Scottish Government's website, with a large title that says 'Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Services in Scotland: Findings from an analysis of surveys issued to NHS Boards in Autumn 2022.' A red banner is at the bottom of the photo with the ME Action Scotland logo and text which says, 'ME Action Scotland response to the Health Board survey about ME.’

#MEAction Scotland response to the survey of Health Boards

On 16th May 2023, the Scottish Government published the findings from an analysis of surveys issued to NHS Health Boards to understand delivery of ME services and implementation of the updated NICE guideline.  #MEAction Scotland welcomes the survey activity and report, as it provides useful evidence about the current issues people with ME are facing

Read More »
Scroll to Top