As always, our community continues to amaze us with its tenacity, creativity, intellect, hard work and generosity. Enjoy a round-up of some of the community happenings these past few months where people with myalgic encephalomyelitis (ME) around the world continue to fight for recognition, treatment, care and dignity. Austria Austrian broadcast station @ATV aired a
Jenny Horner is another stalwart advocate in the myalgic encephalomyelitis (ME) community who inspires us to dig deeper and reach higher. She first got involved with #MEAction UK in an effort to protect children from the effects of being pushed to exercise, which has shown to cause harm in people with ME. Most recently, she
As the year comes to a close and we look over all that we have accomplished, we know that we could not have done this without the amazing work of our #MEAction U.S. state and local advocacy groups. These groups are the foundation of our work as they build support, spread awareness, and advocate for
Listen to the Article: Written by Nancy K Wood / Edited by Eileen Rosenbloom and Marcie Atkinson December 10th will mark the 70th annual Human Rights Day, the anniversary of the adoption of the Universal Declaration. The theme for this decadal celebration is Promote, Engage and Reflect. We in the #MEAction Seniors Connect Facebook
Values and Policies Process Announcement A few months ago, #MEAction Executive Director Jennifer Brea released an open letter, outlining the importance of forming #MEAction’s values and policies as a community. #MEAction’s community-based model utilizes the strengths of our staff team to support, organize and amplify the voices of thousands of volunteers, activists, people with ME, and
Poet and artist, Christiana Baltais, writes about moving the mountains of stigma that harm people with myalgic encephalomyelitis (ME) in this poignant poem. She asked that we share her poem to encourage our community and beyond – people with ME, friends, family and allies – to donate to our cause on #GivingTuesday. Facebook and PayPal are
Across the globe, we are pursuing creative projects across all mediums to tell the world about myalgic encephalomyelitis (ME). In our fall roundup, you’ll be inspired reading about the work and accomplishments of some of our community heroes. Support the #MEAction community by donating to our #GivingTuesday campaign this Tuesday, Nov. 27 where Facebook will match your
We are thrilled to honor Terri Wilder as our fall Volunteer of the Month. Terri spearheaded the protest and petition against Per Fink last month where the community took a stand against the harmful treatments that Per Fink has forced upon people with ME. Terri Wilder has been a monumental activist with #MEAction since getting
We are a group of people over the age of 55 with ME. In August, Bob Gawron wrote our first article introducing us to the ME community. At that time we had 520 members from around the globe. In less than 3 months we have almost doubled our membership. We are now over 1,000 members
Mary Gelpi first published this post on her blog, 25 Pills a Day. Mary launched a petition asking the director of the U.S. National Institutes of Health, Francis Collins, to increase funding to 100 million annually for ME/CFS. She just sent a large box containing the petition and 50,000 signatures to Francis Collins. The box
