Long COVID Awareness Day
March 14, 2025
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#MEAction has been fighting alongside the Long COVID community since 2020 – we know that our futures are inextricably linked.
Category: Community
Why I Joined a Stand Up for Science Rally
March 12, 2025
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Why I joined more than 1,000 protesters at a Stand Up for Science rally in Madison, WI to fight for the funding of critical science.
#MEAction Celebrates Powerful Women
March 5, 2025
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#MEAction acknowledges and celebrates the amazing women in our community.
#MEAction’s Medical Flashcards Featured by CDC!
February 20, 2025
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#MEAction is excited to announce that the Anki Flashcards we created about ME/CFS and infection-associated diseases have been recommended by CDC on its new ME/CFS page for medical students! Anki flashcards are a digital learning tool used by medical students to retain medical knowledge. The deck was created for our #TeachMETreatME campaign with #MEAction Georgia
A Heart-filled Very Modified Movement Class on 2/14
January 30, 2025
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♥️ Join #MEAction for a heart-filled, very modified movement class of the year on Friday, February 14th at 11am PST/2pm EST/7pm GMT. ♥️This class has been crafted specifically for people with ME. This 30 minute class will be hosted virtually. We are thrilled to partner with Shannon Williams-Bramburger of Nourish Therapeutic Yoga, who has been
The Year Ahead
January 23, 2025
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As we embark on the new year, we are excited to share updates about #MEAction’s advocacy projects and community programs with you! While we focus on advancing support, research, and treatments for people with ME, we’re also closely monitoring changes to public health systems under the incoming administration, and will pivot as needed to fight
#NotJustFatigue Video Series: Interview with Creator Elizabeth Ansell
January 13, 2025
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Over the past year, the #NotJustFatigue website, created by Elizabeth Ansell, releases a 10-part, documentary style, short form video series on different aspects involved in living with ME. Titles of the videos include topics such as: You Have No Idea How Serious This Is, Nobody Believes ME, and It’s Not Hysteria: It’s Sexism. In these
#MEAction Georgia: Voice of the Patient in Coordination with CDC & Emory School on Nursing
January 8, 2025
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Back in September, #MEAction Georgia State Chapter partnered with the Centers for Disease Control and Prevention (CDC) and Emory School of Nursing to host, Voice of the Patient: A Panel Discussion with #MEAction Georgia. This event was a continuation of #MEAction Georgia’s #MillionsMissing 2024: #TeachMETreatME programming. Erin Lee and Liz Burlingame of the #MEAction Georgia
Support Keeping Telehealth – Take Action Today!
December 11, 2024
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Expanded telehealth coverage for Medicare is set to expire at the end of this year, December 31st! Learn More #MEAction knows losing expanded telehealth will be a problem for many in our community and the wider disability community. While this action focuses on keeping the expanded Medicare coverage for telemedicine, we know that what Medicare
Exploring the Galaxies: Day In the Life of Activist & Volunteer Coordinator
December 5, 2024
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Our End of Year Fundraiser: Our Community Is Out of This World has been launched into orbit for the past month and we have raised a good chunk of money so far – thank you to everyone who has given! We still have a long way to reach our goal, so if you have yet