You are cordially invited to The Beth Mazur Innovation Prize Fundraiser on Wednesday, November 13th at 2pm PST/5pm EST. Beth Mazur, who co-founded #MEAction was a kind and compassionate human being. She cared deeply about the ME and the Long COVID communities. She also cared deeply about innovation, new creative ways to solve problems that
Join #MEAction for our final very modified movement class of the year on Friday, November 15th at 11am PST/2pm EST/7pm GMT. This class has been crafted specifically for people with ME. This 30 minute class will be hosted virtually. We are, once again, thrilled to partner with Shannon Williams-Bramburger of Nourish Therapeutic Yoga, who has
The Pillow Writers Anthology, Issue 1: Near- Life Experiences is a new literary magazine in the disability community. This inaugural issue features poems, stories, and essays by 17 writers who call themselves the Pillow Writers. The Pillow Writers are an international group of writers living with the neuro-immune diseases of myalgic encephalomyelitis (ME) and Long
We tallied up some numbers from our #TeachME, TreatME campaign to educate clinicians and medical students about ME, and the results are fantastic! The campaign has been a herculean effort by #MEAction staff and our 16 incredible teams across the U.S and U.K., and we are beyond proud! And, the campaign is ongoing! You can
We encourage you to share the Mayo Clinic Proceedings Continuing Medical Education (CME) course on ME/CFS with your doctor! It is a wonderful opportunity for your clinician to get their continuing education credits, and learn about ME at the same time! Clinicians are often appreciative to receive these materials! We’ve created an email template for you to
Breaking news! #MEAction has just been awarded a 3-year grant by the Long COVID Program of the Minnesota Department of Health (MDH) to address the impacts of Long COVID, ME/CFS, and related conditions, across the state and to serve disproportionately impacted communities. #MEAction’s work will focus on better connecting Minnesotans with ME/CFS, Long COVID, and
Quick Overview: Submit one piece of artwork – image, writing, or video Label your artwork with your name as you want it to appear, an underscore, and the number of years with severe ME Example: Lastname_FirstName_14 FirstNameOnly_ No copyrighted material If you are submitting a video, it must be under two minutes. Submission due by
In honor of Pride Month, #MEAction is sharing a heartfelt message from our board member, Jennifer England, about what Pride means to her and her wife who lives with severe ME. My wife and I have both been queer our whole lives, but in the 70s that was the quiet part you didn’t say out
We are THRILLED to share the rolling successes of our #TeachMETreatME campaign with you, as we report back on the amazing medical education events that have taken place so far – with many more to come in the upcoming months! (And don’t miss the global #MillionsMissing events later in the article!) Over the past several
