Awareness Archives

Category: Awareness

Trio of Articles from Palo Alto Online Highlight ME/CFS Patients

July 12, 2015 No Comments

Palo Alto Online recently published a series of three articles highlighting the struggles faced by Mylagic Encephalomyelitis (Chronic Fatigue Syndrome) patients and their caregivers. The series centers around Whitney Dafoe and his father’s research work. All three articles are excerpted and briefly summarized below. Chronic fatigue syndrome saps its victims, but new research may find

Acknowledge those suffering from Chronic Illnesses.

July 9, 2015 3 Comments

I have started a petition as I feel the general public need to be more educated on chronic illnesses.

Meet Marathon Mike: Running 28 Marathons for Invest in ME

July 7, 2015 1 Comment

Meet Mike, the man behind Mike’s EU Marathon Challenge Mike has pledged to run 28 marathons for Myalgic Encephalomyelitis awareness and Invest in ME Recently I interviewed Mike from Mike’s EU Marathon Challenge to get to know the man behind the impressive goal. If you don’t remember, Mike recently pledged to run 28 marathons for

Real sufferers vs. models (portrayal of FM, CFS and CSM in the media)

July 6, 2015 No Comments

Compare real sufferers of FM, CFS and MCS to models who ‘portray’ these illnesses for magazines and articles on the net is very easy (and sad)

#myMEstory

July 2, 2015 No Comments

As part of the #chilliMEchallenge we are encouraging people to tell us their #myMEstory and create awareness by putting a voice and a face to this illness.

UPDATE: Marathon for ME BBC Interview with Tom and Naomi Whittingham

July 1, 2015 No Comments

BBC Interview about ME Awareness and Fundraising! We have been overwhelmed by the response to Tom’s Marathon for ME awareness and fundraising campaign. As Tom says: “I am so proud to have completed my first marathon, but I am even more proud to have been able to raise so much money and awareness for ME,

#MEawarenesshour Special Post Exertional Malaise Hour

June 18, 2015 1 Comment

#MEawarenesshour: first symptom-themed hour, 24th June Next Wednesday (24th june) we’ve decided to try something a little different for #MEawarenesshour. Instead of talking in general about ME we would like to focus on one of its major symptoms, PEM – Post Exertional Malaise. Why? Because PEM is one of the most misunderstood symptoms of ME

Live Webcast – Dr Lipkin and Dr Hornig take the #ChilliMEchallenge

June 17, 2015 No Comments

Tune in to the LIVE webcast on July 1st, 1:00PM EST and watch Dr Ian Lipkin and Dr Mady Hornig take the #ChilliMEchallenge!

Ian Lipkin and Mady Hornig respond to the #ChilliMEchallenge

June 17, 2015 1 Comment

Researchers at Columbia CII have taken on the #chilliMEchallenge – and they just made it a whole lot spicier! The #chilliMEchallenge hit ME/CFS social media by storm. Four young women with ME/CFS got together and issued a fun challenge — to eat a hot chilli or donate to ME/CFS research at Columbia — throughout our

The Well Made Project – A Sense of Unexpected Events

June 9, 2015 No Comments

Online art and health exhibition featuring extracts from “The State of ME” As part of London Creativity and Wellbeing week 4-12 June, The Well Made Project is hosting an online exhibition called A Series of Unexpected Events. ‘Over the course of a week, this online exhibition on art and health will publish an artwork by