Awareness Archives

Suffering the Silence Campaign for M.E.

August 9, 2015 No Comments

Write “M.E.” on your left hand or forearm (if you do not want to use marker on your skin, you can improvise with a piece of paper as many have done). Cover your mouth with your hand and make sure to look into your camera lens. Upload to Twitter or Instagram with the hashtags: #sufferingthesilence #MEAction and #severeme. If you are on Facebook, you will need to post to The #MEAction Network page AND use the hashtags above.

Four ways to Observe Severe ME Awareness Day

August 8, 2015 2 Comments

Saturday, August 8th is Severe ME Day. It is a day of awareness raising for those suffering severe myalgic encephalomyelitis as well as a day of remembrance. August 8th was the birthday of Sophia Mirza, a 32 year-old woman who died of ME. Here are three ways you can observe the day: 1) Join the Twitter

Sign a petition to Reinstate Federal Research Funding for ME/CFS

August 7, 2015 No Comments

Help Find a Cure for Whitney Dafoe and others like him!
Hearing that funding has been reduced to nothing is heartbreaking. Please hear out these words from something who is suffering, and help him:

Thank you DePaul! #ChilliMEchallenge for #MEAction

August 3, 2015 No Comments

Leonard Jason and the DePaul Research team’s #ChilliMEchallenge supporting #MEAction Thank you to the entire team at DePaul’s Center for Community Research for your incredible work for ME/CFS patients around the world. And thank you for choosing #MEAction for your donation. The #MEAction team is so grateful for your support! Check out the DePaul #ChilliMEChallenge

CDC – Public Health Promotion of Chronic Fatigue Syndrome

August 3, 2015 No Comments

The CDC wants information from businesses about producing public radio/audio recordings to increase ME/CFS awareness
Deadline: Aug 05, 2015 4:00 pm Eastern
Objectives:
The goal of this work is to increase awareness of CFS through the use of public radio/audio recording. The specific objectives are to 1) produce radio/audio recording, 2) produce segments that are broadcast on NPR’s Morning Edition and on the NPR website; and 3) increase awareness of CFS and further facilitate the support of loved ones and society as a whole to improve the quality of life for patients with CFS.

August 8 – Severe ME Day Twitter Storm

August 3, 2015 6 Comments

let’s get the word out august 8!!

Spoonie Survival Kits

July 18, 2015 No Comments

Little bags of happiness for chronic illness sufferers!

Llewellyn King: Virus Hunters Turn to Chilli Peppers

July 17, 2015 No Comments

Excerpts from Llewellyn King’s article Virus Hunters Turn to Social Media — and Chili Peppers posted on Huffington Post, The Blog at 07/15/2015 3:33 pm EDT Why were two of the world’s most eminent scientific researchers sitting down to munch their way through a plate of chili peppers, flavored with Tabasco sauce, setting their mouths

Norway Combats the "Stress Theory" for ME/CFS

July 15, 2015 No Comments

This article by Ola Didrik Saugstad was originally published 14 July 2015, at. 8:00 in leading Norwegian newspaper Dagbladet.no. Excerpts from the online English translation below. Undocumented treatments have led to some of the worst disasters in the history of medicine. Many ME patients feel today that the public health system is exacerbating their condition.

BBC journalist's blog on ME

July 15, 2015 1 Comment

I would like to share an incredible blog post written by John Darvall, the BBC radio journalist who interviewed me and my family recently. He writes: “When I knocked on the door to interview Naomi I knew little about M E. other than its dodgy reputation and the questions about whether it was actually a

Category: Awareness