Severe ME Artists Project — Gallery
July 29, 2021
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A collection of works by artists with severe ME.
Category: Awareness
#MEAction CA—Article & Interview Published in Medical Board of CA’s Newsletter
July 15, 2021
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#MEAction CA’s advocacy work resulted in getting an article & interview published in Medical Board of CA’s newsletter!
#MEAction’s BIPOC Clinical Outreach Group Reflects on a Year’s Work
April 26, 2021
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Outreach to BIPOC communities has always been a challenge in ME/CFS. In a disease where diagnosis is so hard to come by, who gets a diagnosis is not a matter of prevalence but a matter of privilege. While community-based studies show just as many Black people get ME as white people, if not more, white
Waiting for Superman – UK Book Giveaway and Review
March 2, 2021
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Do you want to win a free copy of Waiting for Superman? We have three copies to give away to people in the UK! To enter, all you have to do is follow #MEAction UK on Instagram, like and comment on this post. The deadline is 9am (GMT) Monday 8th March! Win a copy! Thank
Long COVID Patients Warned of Damaging Exercise Programme
November 3, 2020
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#MEAction UK is highlighting the links between “Long Covid” and ME in the press. In particular, we want people at risk to know about the danger of exercise if they have post-exertional malaise.
OUR SUMMER IN REVIEW: ADVOCACY AND EDUCATION
September 2, 2020
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What a Summer for Advocacy and Education! We know the summer isn’t over yet, but A LOT has been happening with ME advocacy and education in the United States and the United Kingdom, and we want to make sure you are up to date, in the loop, and ready for next steps! National Institutes of Health (NIH)
ME/CFS and Long COVID: What’s the Connection?
August 25, 2020
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#MEAction hosted a seminar for post-COVID-19 “long haulers” on Friday, August 7, to learn more about ME/CFS as a potential diagnosis after viral infection, in partnership with Body Politic and the COVID-19 Working Group New York. Watch the seminar now!
GOOD MORNING BRITAIN GETS IT WRONG ON POST-COVID TREATMENT AND ME
August 21, 2020
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#MEAction UK has written a letter of complaint to Good Morning Britain in response to recent statements from Dr Hilary Jones on the programme, regarding the rehabilitation of long COVID patients. In his interview with Kate Garraway yesterday, Dr Jones recommended graded exercise as a strategy for those recovering from COVID-19. There is now a
Let Us Honor the Most Severe in our Community Today!
August 8, 2020
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Let us honor the most severe in our community today, Severe ME Day, Saturday, August 8th.
Coming to Terms with My Disability
July 23, 2020
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My husband often pushes me home in my son’s stroller because I have enough energy to get to the playground but not enough to get home. There are so many types of disabilities and so many ways to address them, and the disability rights’ activists of the 70s taught the world – and myself –