Category: Awareness

Updates from the first #MillionsMissing Meeting

Last week, #MEAction had its first planning call for the May 25th #MillionsMissing protest. The protest, with the theme #MillionsMissing, brings attention to the millions of people with ME/CFS missing from their work, their families, and their lives, and the millions of dollars missing from research funding.  To show this invisible illness, we are asking

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Light up the Night on May 12, 2016!

a may 12 project. The challenge is to get as many buildings as possible in your country to light up with one of the 3 colours used on May 12th – blue, purple or green. We want public buildings/places like City Halls, Niagara Falls and we want individual homes lit up too!

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Join this day of protest: May 25th

#MEAction is excited to announce its first protest in Washington DC! (Now rescheduled for May 25, 2016) Please join us May 25th for a protest outside of the Health and Human Services building in Washington DC. Our goal is to raise the visibility of this illness and the people living with it. Can’t make it to

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Caravana La Paz: The continued fight for equality in Bolivia

On March 21st, the brave Bolivian AKIPerDis protestors began their 265 mile journey by wheelchair through the Andes mountains to capital La Paz to demand equality and livable disability pensions. The group has already come face-to-face with adversity in many of its forms in the roughly 100 miles that they’ve traveled since the 21st of March. Amidst death

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Why is MEpedia so crucial?

MEpedia is a crucial tool for advocates, researchers, doctors, policy makers, and even the general public, that will allow them to find all current information on myalgic encephalomyelitis in one place.

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The Unpredictability Factor

Running on the idea that visual representations of life with M.E. can – as accurately as possible – portray the depth, the range, the severity and the unpredictability of the condition, I am pleased to say that I am currently embarking on Change For M.E. Change For Us’ next visual project….

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Ron Davis' Plea for his Son's Life

Ron Davis’ Plea for his Son’s Life Ron Davis recently posted a heart-felt plea for more research “before his son, and others like him, die from this horrific disease.” He has given us permission to share his post in order to reach as many people as possible with Whitney’s story. Here is Dr Davis’ plea:

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