*NEW TIME * Australia: See Forgotten Plague Film in Canberra
March 3, 2016
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UPDATED: Canberra screenings of film ‘Forgotten Plague’ on Friday 1 April at 6pm or Monday 4 April at 1pm.
Category: Awareness
The Unpredictability Factor
February 14, 2016
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Running on the idea that visual representations of life with M.E. can – as accurately as possible – portray the depth, the range, the severity and the unpredictability of the condition, I am pleased to say that I am currently embarking on Change For M.E. Change For Us’ next visual project….
Ron Davis' Plea for his Son's Life
January 3, 2016
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Ron Davis’ Plea for his Son’s Life Ron Davis recently posted a heart-felt plea for more research “before his son, and others like him, die from this horrific disease.” He has given us permission to share his post in order to reach as many people as possible with Whitney’s story. Here is Dr Davis’ plea:
Aust Senator questions government on lack of action on ME
November 16, 2015
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Australia’s Senator Ludlam asks Department of Health what they do for people with ME.
Canary Live at Good Pitch New York
October 19, 2015
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Canary in a Coal Mine will be one of seven films to take the stage at BRITDOC‘s Good Pitch New York on Tuesday, October 20th. It’s a unique, live event that leverages a diverse audience to help build movements and campaigns around social issue films. Good Pitch brings filmmakers together with foundations, NGOs, campaigners, philanthropists, policymakers, brands, technology, government, and media
Crowdsourcing information for a pharmacy M.E. resource
October 12, 2015
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I’m working with a national M.E. charity, Action for M.E., as their Volunteer Pharmacist, providing information about pharmacy services, writing health and pharmacy-related articles, and putting together a resource for pharmacy professionals about M.E. I’m gathering thoughts and suggestions from both people with M.E. and pharmacy professionals because it’s important that the resource includes a full picture of M.E.
Help Us Put a Face on ME/CFS!
September 20, 2015
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The Solve ME/CFS Initiative has launched a campaign to help increase awareness of —and ultimately research funding for—ME/CFS. The campaign, “Humans of ME/CFS,” is a takeoff of the popular “Humans of New York” photoblog and Facebook page. The aim of the campaign is to show the faces and stories of those suffering from ME/CFS worldwide
Hidden Faces of M.E.
September 19, 2015
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UK charity Action for M.E. are this week hosting a social media campaign and its aim is to raise awareness of M.E. as a hidden illness among as wide an audience as possible, and to help people understand what having M.E. feels like. The all important message being, ‘there is a hidden face of M.E.
This Video Could Save your Life
September 13, 2015
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The Use of Patient Blogs as a Care Resource Thanks to Greg Crowhurst for his incredibly kind review of my presentation on his blog and for giving permission for me to share his review on the #MEAction site: “My heart goes out to anyone newly diagnosed with “ME”, Myalgic Encephalomyelitis, for you are instantly thrown
An interview with lead singer of Belle and Sebastian – on life with M.E.
September 12, 2015
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Stuart Murdoch talking openly about his experiences of M.E., Los Angeles, August 2015 “This is a pop band that sprang out of infirmity.” Stuart Murdoch in a great article from The Guardian December 2014 “Critics love Belle and Sebastian, they always have.” Daily Post September 2015 The Solve ME/CFS Initiative has managed to produce some