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Category: Awareness

burnt red rectangle image. with a red flashing siren in the top left corner. The words, Closing: Office of Long COVID! #MEAction logo in the bottom right hand corner.

Office of Long COVID at HHS Closing

March 25, 2025 No Comments

Ian Simon, the head of the Long COVID Office at Department of Health and Human Services (HHS), released the following statement to coworkers: Dear Colleagues, We are writing to let you know that the Office of Long COVID Research and Practice will be closing as part of the administration’s reorganization coming this week. We are

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Red graphic with text: "Trump Admin Cuts Funding for ME/CFS Collaborative Research Center at Columbia University" and a #MEAction logo.

Trump Cuts Funding for ME/CFS Centers at Columbia University

March 20, 2025 2 Comments

We are writing to you with an urgent call to action. The Trump administration has cut funding for the Center for Solutions for ME/CFS at Columbia University as part of a broader $400 million funding termination at the university. This devastating decision includes the loss of NIH funding for one of the nation’s few Collaborative Research

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sky blue square image with a collection of cookies lining the bottom 1/3 of the image. At the top of the image is the Baby Deer Bakery Logo which features a cartoon drawn image of a deer face. the words, volunteer's bakery spreads ME awareness + raises funds. The meaction logo is the bottom right hand corner.

Volunteer’s Bakery Spreads ME Awareness + Raises Funds

March 19, 2025 1 Comment

#MEAction Georgia volunteer, Cory Anderson-Sweeney, uses her Baby Deer Bakery to spread awareness about ME and her Cookie of the Month Club to help raise funds for #MEAction. We were inspired by her journey and we hope you will enjoy the scrumptious look into her story in her own words. Here’s the delicious morsel: When

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black rectangle with white squiggles in the background. red bubbles and honeycomb in the corners. in the middle a red box that reads: #MEAction & the Mayo Clinic awarded the Sigma 2024 American Nurses Credentialing Center Evidence-Based Practice Implementation Grant. #MEAction logo in the bottom right hand corner

#MEAction & Mayo Clinic Projects Continue – New Grant Awarded

November 18, 2024 No Comments

Given the rapidly changing landscape at the federal level, we recognize that the road ahead may bring some changes for patient advocacy. Even in this evolving environment, we’re excited to share some positive news: #MEAction and the Mayo Clinic have been awarded the Sigma 2024 American Nurses Credentialing Center Evidence-Based Practice Implementation Grant awarded by

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You’re Invited: The Beth Mazur Innovation Prize Fundraiser

November 1, 2024 No Comments

You are cordially invited to The Beth Mazur Innovation Prize Fundraiser on Wednesday, November 13th at 2pm PST/5pm EST. Beth Mazur, who co-founded #MEAction was a kind and compassionate human being. She cared deeply about the ME and the Long COVID communities. She also cared deeply about innovation, new creative ways to solve problems that

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