Category: All News

Meet Marathon Mike: Running 28 Marathons for Invest in ME

Meet Mike, the man behind Mike’s EU Marathon Challenge Mike has pledged to run 28 marathons for Myalgic Encephalomyelitis awareness and Invest in ME Recently I interviewed Mike from Mike’s EU Marathon Challenge to get to know the man behind the impressive goal. If you don’t remember, Mike recently pledged to run 28 marathons for

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Promote your Action at #MEAction: Why and How

Why should you promote your action at #MEAction? This article is part of an ongoing series highlighting different #MEAction features and how to use them. For more how-to and informational articles, please see all the articles on the resources page. You are doing incredible things for the Myalgic Encephalomyelitis (Chronic Fatigue Syndrome) community and we

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Create a Petition at #MEAction: Why and How

Create a Petition at #MEAction This article is part of an ongoing series highlighting different #MEAction features and how to use them. For more how-to and informational articles, please see all the articles on the resources page. Petitions are a great way to organize a group of people and show the amount of support for

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Create an Event at #MEAction: Why and How

Why should anyone create a #MEAction event? This article is part of an ongoing series highlighting different #MEAction features and how to use them. For more how-to and informational articles, please see all the articles on the resources page. There are so many things happening in the Myalgic Encephalomyelitis (Chronic Fatigue Syndrome) community! Don’t let

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Behind the Numbers of the #MEAction Funding Equality Petition

Why $250,000,000 in research funding? The #MEAction flagship Funding Equality Petition is called “Tell Congress to Support Funding Equality for ME” because we’re asking the United States Congress increase NIH Research funding for Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) to $250 million per year. Most patients, doctors, and researchers in the ME/CFS community agree

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#MEawarenesshour Special Post Exertional Malaise Hour

#MEawarenesshour: first symptom-themed hour, 24th June Next Wednesday (24th june) we’ve decided to try something a little different for #MEawarenesshour. Instead of talking in general about ME we would like to focus on one of its major symptoms, PEM – Post Exertional Malaise. Why? Because PEM is one of the most misunderstood symptoms of ME

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Ian Lipkin and Mady Hornig respond to the #ChilliMEchallenge

Researchers at Columbia CII have taken on the #chilliMEchallenge – and they just made it a whole lot spicier! The #chilliMEchallenge hit ME/CFS social media by storm. Four young women with ME/CFS got together and issued a fun challenge — to eat a hot chilli or donate to ME/CFS research at Columbia — throughout our

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