All News Archives

Living with ME Radio interview

June 15, 2015 No Comments

Radio Interview about living with ME on RTE – The Irish National Radio station After the article about living with ME/CFS was posted in the journal.ie I was invited to do a radio interview along with Sarah Meehan who is also living with ME [button_color url=”http://www.rte.ie/radio/radioplayer/rteradiowebpage.html#!rii=9%3A20794540%3A15036%3A10%2D06%2D2015%3A” content=”Listen to the full interview” target=””] Best wishes to all.

Virscan: 1 Test for every virus that has ever infected you

June 4, 2015 1 Comment

Excerpted from Science and Popular Science A new test called VirScan would allow a patient to be tested for hundreds of viral infections at the same time. “To see if a patient has ever been infected by a particular virus, researchers expose antibodies in the patient’s blood to molecules with the virus’ molecular signature. In

I was led to believe there was ‘no future’ with with my diagnosis. Well, I beg to differ.

June 3, 2015 No Comments

I have learned to cope with M.E., a serious and potentially disabling chronic disorder, through art and creativity. Excerpted from The Journal.ie I remember reading articles on M.E. Awareness Day within the first year of being diagnosed with this debilitating illness. It was a story about somebody who had this condition for five years. I

Update: Occupy USDOJ Demonstration in Washington DC

June 2, 2015 No Comments

The demonstration has kicked off yesterday June 1st, with a great start, at the Justice Department in Washington DC. The aim of this demonstration is to “occupy” as long as possible. Their permit is valid till July 4. Some demonstrators plan to stay a week. Others will try to stay till the end. The objective

Update: Marathon for Myalgic Encephalomyelitis

June 2, 2015 3 Comments

Tom Whittingham, running for his sister and ME Research UK Tom ran the Edinburgh marathon on May 31st as a personal challenge and a way to raise awareness and funds for Myalgic Encephalomyelitis research. Why did he do this? In his own words, “My sister Naomi has suffered from ME for over 25 years, since

Lymphatic vessels in the brain: Gamechanger for Neuroimmune diseases?

June 2, 2015 3 Comments

It’s rare that new research means rewriting textbooks. But new information discovered by University of Virginia School of Medicine researchers might do just that for neuroscience, immunology, and even anatomy. This discovery also has definite implications for the diagnosis and treatment of neuroimmune conditions like Myalgic Encephalomyelitis (Chronic Fatigue Syndrome). Excerpted from multiple sources. “The relationship

Takeaways from The ME Association's CBT, GET, and Pacing Report

May 29, 2015 2 Comments

ME/CFS Illness Management Survey Results “No Decisions about me without me” The ME Association just released the results of a patient survey taken in 2012 that covered management and self-management courses commonly offered to patients with Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, or Post-viral Fatigue Syndrome. The report (available in full on the ME Association website)

Q&A with the OMF Severely Ill Big Data Study

May 25, 2015 No Comments

The Open Medicine Foundation’s big data study on severely ill patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome is an exciting new project designed to uncover biomarkers by studying the sickest of the sick. Want to learn more? Your pressing questions about the study are answered below. How long will it take to do the study?

New hope for those with Chronic Fatigue Syndrome

May 23, 2015 No Comments

Could new cytokine research be paving the way to a diagnostic test for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome? Excerpted from Columbia Magazine – Spring issue: As many as four million Americans are thought to suffer from chronic fatigue syndrome, a disease characterized by symptoms that include persistent lethargy, headaches, muscle pain, mental fogginess, and sleep problems

Recapping ME/CFS Awareness Day – #May12BlogBomb

May 22, 2015 No Comments

May 12th is Awareness Day for ME, Fibromyalgia, Lyme Disease, Chronic Fatigue Syndrome and Multiple Chemical Sensitivity. Every year bloggers use this opportunity to express their views and to raise the profile of these often misunderstood and maligned conditions. A call was put out to bloggers to participate in a #May12BlogBomb. The loose theme this

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