All News Archives

Category: All News

Trio of Articles from Palo Alto Online Highlight ME/CFS Patients

July 12, 2015 No Comments

Palo Alto Online recently published a series of three articles highlighting the struggles faced by Mylagic Encephalomyelitis (Chronic Fatigue Syndrome) patients and their caregivers. The series centers around Whitney Dafoe and his father’s research work. All three articles are excerpted and briefly summarized below. Chronic fatigue syndrome saps its victims, but new research may find

New Features at #MEAction!

July 8, 2015 No Comments

Announcing Private Messaging, and an Idea Center with real-time notifications. You’ve all been unreasonably patient and understanding as we work through the bugs of our beta launch and work to build the best possible platform for you. The #MEAction team is thrilled to announce a new set of features available now for #MEAction members. Private

Meet Marathon Mike: Running 28 Marathons for Invest in ME

July 7, 2015 1 Comment

Meet Mike, the man behind Mike’s EU Marathon Challenge Mike has pledged to run 28 marathons for Myalgic Encephalomyelitis awareness and Invest in ME Recently I interviewed Mike from Mike’s EU Marathon Challenge to get to know the man behind the impressive goal. If you don’t remember, Mike recently pledged to run 28 marathons for

Real sufferers vs. models (portrayal of FM, CFS and CSM in the media)

July 6, 2015 No Comments

Compare real sufferers of FM, CFS and MCS to models who ‘portray’ these illnesses for magazines and articles on the net is very easy (and sad)

Promote your Action at #MEAction: Why and How

July 4, 2015 2 Comments

Why should you promote your action at #MEAction? This article is part of an ongoing series highlighting different #MEAction features and how to use them. For more how-to and informational articles, please see all the articles on the resources page. You are doing incredible things for the Myalgic Encephalomyelitis (Chronic Fatigue Syndrome) community and we

UPDATE: Marathon for ME BBC Interview with Tom and Naomi Whittingham

July 1, 2015 No Comments

BBC Interview about ME Awareness and Fundraising! We have been overwhelmed by the response to Tom’s Marathon for ME awareness and fundraising campaign. As Tom says: “I am so proud to have completed my first marathon, but I am even more proud to have been able to raise so much money and awareness for ME,

Create a Petition at #MEAction: Why and How

June 25, 2015 No Comments

Create a Petition at #MEAction This article is part of an ongoing series highlighting different #MEAction features and how to use them. For more how-to and informational articles, please see all the articles on the resources page. Petitions are a great way to organize a group of people and show the amount of support for

Create an Event at #MEAction: Why and How

June 25, 2015 No Comments

Why should anyone create a #MEAction event? This article is part of an ongoing series highlighting different #MEAction features and how to use them. For more how-to and informational articles, please see all the articles on the resources page. There are so many things happening in the Myalgic Encephalomyelitis (Chronic Fatigue Syndrome) community! Don’t let

Behind the Numbers of the #MEAction Funding Equality Petition

June 22, 2015 3 Comments

Why $250,000,000 in research funding? The #MEAction flagship Funding Equality Petition is called “Tell Congress to Support Funding Equality for ME” because we’re asking the United States Congress increase NIH Research funding for Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) to $250 million per year. Most patients, doctors, and researchers in the ME/CFS community agree

#MEawarenesshour Special Post Exertional Malaise Hour

June 18, 2015 1 Comment

#MEawarenesshour: first symptom-themed hour, 24th June Next Wednesday (24th june) we’ve decided to try something a little different for #MEawarenesshour. Instead of talking in general about ME we would like to focus on one of its major symptoms, PEM – Post Exertional Malaise. Why? Because PEM is one of the most misunderstood symptoms of ME