Leonard Jason and the DePaul Research team’s #ChilliMEchallenge supporting #MEAction Thank you to the entire team at DePaul’s Center for Community Research for your incredible work for ME/CFS patients around the world. And thank you for choosing #MEAction for your donation. The #MEAction team is so grateful for your support! Check out the DePaul #ChilliMEChallenge
A new Danish study shows that ME patients have among the greatest levels of disability when compared to other common diseases: [pullquote align=”full” cite=”” link=”” color=”#E7453A” class=”” size=””]ME/CFS has the lowest health-related quality of life score when compared to cancer, diabetes, lupus, stroke, heart disease and chronic renal failure.[/pullquote] The study surveyed 105 patients. 27% of ME
A constituent with ME in the Australian Capital Territory (ACT) sent the Chilli ME Challenge to one of her representatives and she took it up! Nicole Lawder was elected to the ACT Legislative Assembly as the Member for Brindabella in 2013. ME needs Allies wherever we can find them, especially in the political arena! Thank you Nicole
The situation for people with ME in Wales is extremely difficult. This is because there is no Specialist Care for people and the GPs do not have any training about the condition during their training. It is left up to them to find out about the condition if they need to or want to. Therefore
Using a new technology that allows the sampling of living T-cells in real time, researchers at Stanford University have found that men and women turn on and off immune system genes differently. This may help explain the much higher incidence of autoimmune diseases like scleroderma, lupus, and multiple sclerosis among women. It may also help explain why
Myalgic Encephalomyelitis needs activism. There is so much work to be done in our community and so many people who want to do it, but don’t know where to start. The biggest limiting factors? Often, our own bodies. As ME/CFS patients we can be trapped and unable take part in desperately-needed awareness and activism campaigns.
Excerpts from Llewellyn King’s article Virus Hunters Turn to Social Media — and Chili Peppers posted on Huffington Post, The Blog at 07/15/2015 3:33 pm EDT Why were two of the world’s most eminent scientific researchers sitting down to munch their way through a plate of chili peppers, flavored with Tabasco sauce, setting their mouths
This article by Ola Didrik Saugstad was originally published 14 July 2015, at. 8:00 in leading Norwegian newspaper Dagbladet.no. Excerpts from the online English translation below. Undocumented treatments have led to some of the worst disasters in the history of medicine. Many ME patients feel today that the public health system is exacerbating their condition.
I would like to share an incredible blog post written by John Darvall, the BBC radio journalist who interviewed me and my family recently. He writes: “When I knocked on the door to interview Naomi I knew little about M E. other than its dodgy reputation and the questions about whether it was actually a
Consider your target It’s only natural that targets might be institutions. Try to address your petition to specific individuals who have the influence or decision-making power to respond to your request. Start with the institution and then think about exactly whose hands you want to put the petition into. The more specific you can be,
