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Validity of Chronic Fatigue Syndrome bolstered by research

September 17, 2015 1 Comment

Written by Brent Handel Originally published in The Lawyers Weekly June 26 2015 issue, reprinted with permission Chronic fatigue syndrome/myalgic encephalomyelitis, commonly referred to as ME/CFS, is characterized by profound fatigue, cognitive dysfunction, sleep abnormalities, autonomic manifestations, pain, and other symptoms that are made worse by exertion of any sort. For decades, plaintiffs’ personal injury

Study shows immune differences in moderate and severe CFS/ME

September 17, 2015 11 Comments

New Australian study shows immune difference in moderate and severe patients. It may lead to a test based on these markers.

This Video Could Save your Life

September 13, 2015 1 Comment

The Use of Patient Blogs as a Care Resource Thanks to Greg Crowhurst for his incredibly kind review of my presentation on his blog and for giving permission for me to share his review on the #MEAction site: “My heart goes out to anyone newly diagnosed with “ME”, Myalgic Encephalomyelitis, for you are instantly thrown

An interview with lead singer of Belle and Sebastian – on life with M.E.

September 12, 2015 1 Comment

Stuart Murdoch talking openly about his experiences of M.E., Los Angeles, August 2015 “This is a pop band that sprang out of infirmity.” Stuart Murdoch in a great article from The Guardian December 2014 “Critics love Belle and Sebastian, they always have.” Daily Post September 2015 The Solve ME/CFS Initiative has managed to produce some

Julie Rehmeyer on Science and ME/CFS

September 12, 2015 No Comments

Julie Rehmeyer on Science and ME/CFS Julie Rehmeyer, an award-winning science and math writer, was recently interviewed about how her experience with ME/CFS has affected her perspective on science. The insightful piece ranges from a discussion of how the CDC’s treatment of ME/CFS has lessened her trust of institutions of science to how her experiences have

MedPage Today: ME/CFS is Gaining Attention

September 12, 2015 No Comments

MedPage Today Focuses on Need for Recognition of ME/CFS and Research Funding MedPage Today, a news site for medical workers, published an article about ME/CFS that mentions the #MEAction campaign to increase federal research funding. The article gathered quotes from top ME/CFS researchers Leonard Jason and Lucinda Bateman, and it summarized the findings of the recent

Bestselling Author's Latest Novel Features Girl with ME/CFS

September 4, 2015 12 Comments

Bestselling Author John Connolly’s Latest Novel Features Girl with ME/CFS “I know some people with ME, and tried hard to get it right.” John Connolly If like me you are a fan of thrillers – especially ones with a more than the unusual twist – then you probably don’t need me to introduce the almost

CDC Funding Update: The Importance of Raising Our Voice

August 30, 2015 28 Comments

A month ago, patient advocate Jennifer Spotila discovered that the U.S. Senate was proposing to zero-out the ME/CFS budget at the Centers for Disease Control and Prevention. This discovery launched a wave of emails, letters, and phone calls to key Senate staff from hundreds of people, including representatives of six different ME/CFS organizations. After this coordinated effort, we now

Kickstart for Lipkin and Hornig's BIG Microbiome Study

August 27, 2015 2 Comments

A larger, stronger, even more robust microbial diversity and immunity study is starting at Columbia Center for Infection & Immunity (CII) for ME/CFS! The great news is – very recently Columbia CII received an NIH grant to investigate microbial diversity and immunity in ME/CFS. However, it’s not all great news for Columbia’s big microbiome study.

Study shows gender differences in CFS

August 25, 2015 2 Comments

Spanish researchers find differences in men and women with CFS/ME.

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