FITNET trial criticised in Behavioural Sciences journal
August 18, 2017
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Severe ME patients publish paper questioning central findings of Dutch CBT/GET trial
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Update on the NIH Research Funding totals from SMCI
August 7, 2017
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The Solve ME/CFS Initiative is disappointed to report that the projected estimates for FY 17 are being reported at lower numbers than expected.
Jennie Spotila: NIH's management of conflict of interest
July 21, 2017
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EDITOR’S NOTE: This reporting is written by Jennie Spotila Next week, the NIH will convene a peer review panel to evaluate and score the applications submitted under the Data Center and Collaborative Research Center RFAs. NIH’s management of conflict of interest is key to understanding who is – and who is not – on the
Trifecta for ME awareness in Knoxville, Tennessee
June 29, 2017
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Trifecta in Knoxville, Tennessee In an example of Knoxville leading the way for Tennessee, Mayor Madeline Rogero and the Knoxville City Council have provided an ME/CFS Proclamation and Resolution in honor of May 12th, International ME/CFS Awareness Day. Supporting the global movement of lighting bridges and buildings in the ME blue awareness color, Knoxville’s Henley
Tuller on PACE Investigation Plans: Not Beholden to Anyone
June 8, 2017
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#MEAction sat down with David Tuller recently for a wide-ranging discussion about the crowdfunding effort to help him continue his PACE investigations, the devastating stories he has heard from patients around the world, the poor media coverage of the PACE Trial flaws, and the ideal end result of all of the work he is doing. David Tuller
Voices from Sacramento: Janet Dafoe and Ashley Haugen
June 7, 2017
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Some of you may know Dr. Janet Dafoe and her daughter Ashley Haugen through their tireless advocacy work for ME. Dr. Dafoe’s son and Ashley’s brother, Whitney Dafoe, has severe ME, and is the impetus behind their efforts to raise funding, raise awareness, and raise hell. These statements were read at the Sacramento California rally on June 2, 2017.
Passionate Pragmatist: Carol Head and the Fight for ME/CFS Equality: The SMCI Pt. I
May 31, 2017
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One of my deeply held personal values is that ALL people must be treated respectfully…I have found that respectful, highly knowledgeable, forceful advocacy language that expresses the desperate needs of our community is the most effective. But please do not mistake my professional, respectful demeanor as anything less than a cover for my righteous indignation and outrage at the inhumanity of our community’s treatment” Carol Head
#BedFest is almost here – Join the call Saturday!
May 5, 2017
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#BedFest is an international art, performance and music festival created by people with Myalgic Encephalomyelitis
Webinar: Dr. Levine and Montoya to discuss developments in ME/CFS research
April 13, 2017
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On Thursday, April 20, Solve ME/CFS Initiative (SMCI)‘s research webinar series will be a double feature with Dr. Susan Levine and Dr. Jose Montoya at 10 a.m. PT/ 1 p.m. ET. Dr. Levine is founder of the Medical Office of Susan M. Levine, MD. Over the last two decades, Dr. Levine has collaborated with other clinicians and
Australian scientists publish study showing potential biomarker for ME
April 10, 2017
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Scientists in Canberra and Melbourne have just published a study claiming to have found that activin B is a biomarker for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS).
Participants with ME/CFS were recruited using the Canadian Consensus Criteria.