All News Archives

A Tribute to Mag Friel

April 7, 2018 4 Comments

I know hardly anything of Mag’s life before she fell ill in 1993. We were witnesses to each other’s ‘now’. There are clues though: when I sent our shoes to the #MillionsMissing protest, Mag selected a pair of dainty black Velours stiletto heels with pointed toes. Imagine her staccato gait – upright and stable! Last year, while Cannes was in the news, she wrote: “May 1991 sailed to Cannes on my partner’s yacht, hoping to complete on 5 million film deal we’d worked on for 4 years. May 2017 achieved my goal of having bed sheet changed, first time in months. Heaven. Happy ME Awareness Day. Love and eternal hope for us all. xxxxxx”

Internship Opportunity: Medical Outreach and Science Communications

April 5, 2018 No Comments

#MEAction is a global, grassroots network for people with Myalgic Encephalomyelitis based in Los Angeles. We’re seeking a summer intern passionate about medical education and science communications to support our efforts to bring new clinicians and researchers into this growing field. This internship is ideal for an undergraduate with an interest in science or medicine,

Chronic Illness Foundation Launches in Pakistan – Call for Support

April 5, 2018 1 Comment

Looking for volunteers to launch our Neglected Chronic Illnesses Foundation – Pakistan’s Facebook page. This foundation will be the first to tackle MECFS in Pakistan and will serve as a charity and advocacy organisation – providing patients care; with a fully rounded approach.

Reanalysis of PACE Trial Shows GET and CBT are Ineffective

March 23, 2018 No Comments

What would have been the outcome of the PACE trial had the investigators followed its original protocol instead of relaxing the criteria for “recovery” as the trial progressed? Researchers have just published a paper seeking to answer this question in a reanalysis of the PACE trial based on its original protocol. The authors concluded that

A tribute to ‘Bob’ – Robert Courtney, ME activist, fundraiser, researcher, and friend

March 19, 2018 9 Comments

Following the tragic death of Robert Courtney, some of his friends created the tribute below, and provided the message that precedes it. We at #MEAction are pleased to reproduce both here. We, some of Bob’s many friends, have put together this tribute to him. We do not think it is appropriate to discuss the circumstances

Call-to-Action: Urge your State Health Department to Track ME!

March 19, 2018 12 Comments

Urge your state health department to track myalgic encephalomyelitis/ chronic fatigue syndrome!
Call-to-Action: Please email your state health department and request they track ME/CFS (we have provided the email script for your convenience). A national conference will take place mid-April where states will decide which diseases to track as part of its Behavioral Risk Factor Surveillance System (BRFSS).
If government officials don’t track ME/CFS, how will they know that it is a problem!

OMF's End ME/CFS Worldwide Tour Announces Visits to The Netherlands and Italy

March 15, 2018 No Comments

On OMF’s End ME/CFS Worldwide Tour to the Netherlands and Italy will include a presentation from Linda Tannenbaum, OMF CEO/President and interactive Q&A. The Tour is sharing hope and raising awareness.

OMF to Attend First ME/CFS Conference in Montreal

March 15, 2018 No Comments

“Advancing an International Research Agenda to Address ME/CFS Research Priorities,” the first International Canadian Conference on ME/CFS will be held May 3 – 5, 2018. Ronald W. Davis, PhD, OMF SAB Director and Linda Tannenbaum, OMF CEO/President will be presenting.

Ron Davis to speak at Biomedical Research into ME Colloquium and IIMEC13 in London

March 15, 2018 No Comments

Ronald W. Davis, PhD will be a speaker at both the Biomedical Research into ME Colloquium on May 30-31, 2018 and Invest in ME Research International ME Conference (IIMEC13) on June 1, 2018 in London.

Jackson Laboratory ME/CFS Center Starts Blog to Connect with Patients

March 2, 2018 2 Comments

The main goal of the JAX CRC project is to understand how the immune system, microbiome, and metabolome are connected and disrupted in ME/CFS, and to discover the biological basis of this chronic disease. We are hopeful that the knowledge gained from these studies will help to develop molecular markers for the diagnosis of ME/CFS, and the development of new treatments based on these new targets discovered.

Category: All News