Category: All News

Reanalysis of PACE Trial Shows GET and CBT are Ineffective

What would have been the outcome of the PACE trial had the investigators followed its original protocol instead of relaxing the criteria for “recovery” as the trial progressed? Researchers have just published a paper seeking to answer this question in a reanalysis of the PACE trial based on its original protocol. The authors concluded that

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Call-to-Action: Urge your State Health Department to Track ME!

Urge your state health department to track myalgic encephalomyelitis/ chronic fatigue syndrome!
Call-to-Action: Please email your state health department and request they track ME/CFS (we have provided the email script for your convenience). A national conference will take place mid-April where states will decide which diseases to track as part of its Behavioral Risk Factor Surveillance System (BRFSS).
If government officials don’t track ME/CFS, how will they know that it is a problem!

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OMF to Attend First ME/CFS Conference in Montreal

“Advancing an International Research Agenda to Address ME/CFS Research Priorities,” the first International Canadian Conference on ME/CFS will be held May 3 – 5, 2018. Ronald W. Davis, PhD, OMF SAB Director and Linda Tannenbaum, OMF CEO/President will be presenting.

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Jackson Laboratory ME/CFS Center Starts Blog to Connect with Patients

The main goal of the JAX CRC project is to understand how the immune system, microbiome, and metabolome are connected and disrupted in ME/CFS, and to discover the biological basis of this chronic disease. We are hopeful that the knowledge gained from these studies will help to develop molecular markers for the diagnosis of ME/CFS, and the development of new treatments based on these new targets discovered.

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#TimeForUnrest Joins #MEAction

We’re thrilled to embark on this next phase by bringing the campaign home, under the umbrella of #MEAction. This will allow us to deepen our efforts around four core areas work: public engagement & education; patient support & community organizing; advocacy; and medical & scientific outreach.

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The Launch of "Science for ME" Internet Forum

Science for ME is our major new ME/CFS internet forum with a focus on community, support, advocacy – and, at the heart of it all, science. The forum opened this October and has already attracted over 500 members, with over 25,000 messages on more than 1,400 threads.

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