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ME/CFS Neglect Kills. Act Up. Fight Back. #MEAction. Red tinted image with protestors laying on grass in front of White House with grave stones. Protestor raises one clenched fist above head.

My Truth, Our Trauma, & A Call to Keep Fighting

December 7, 2022 No Comments

Reflections from the World AIDS Day White House Protest

Background photo of White House and lawn between two trees, tinted red. Bold text: "Fund Pandemic Plans" Below in small text: "World AIDS Day 2022"

Take Action Virtually with our White House Protest

November 30, 2022 No Comments

AIDS, ME/CFS & Long COVID activists demand Biden, Congress fund pandemic plans

Large bold text, on an angle reads: Join us for World AIDS Day to End Pandemic Nightmares. Dec 1 12 PM EST outside the White House and online everywhere. Below, a person of color in a face mask with a sign reading "HIV, Long COVID and ME/CFS, COVID-19, Ebola, cholera, monkeypox, TB, and more." Next to a white person in a face mask holding a sign reading "End COVID Everywhere." Below are the logos of organizational co-sponsors: Health GAP, Universities for Access to Essential Medicines, ACT UP New York, ACT UP Philadelphia, Long COVID Justice, Black and Latinx Community Control of Health, MEAction, The Peoples Vaccine, CPD Action, Spaces in Action, Strategies for High Impact, Access is Global.

On World AIDS Day, We’re Taking Action at the White House

November 23, 2022 No Comments

White House Must Confront Global Health Nightmare of Colliding Pandemics

Text across top of image reads: "Experts in infection associated chronic illness" with "WE WANT YOU!" bolded below it. Hand with finger pointed out at viewer. "Apply now" buttons to the left and right with mouse cursor clicking on them.

Infection-associated chronic disease experts needed at ARPA-H

November 22, 2022 1 Comment

Congress launched ARPA-H (the Advanced Research Projects Agency for Health) this past March to focus on high-risk, high-reward research projects with the goal to solve intractable health problems. As ARPA-H is in the process of hiring its first cohort of program managers, #MEAction and a coalition of chronic disease advocacy groups have published an open

Dark image of person lying down with red blur across their head

#MEAction Response to NY Magazine’s Egregious Article on ME and Long COVID

November 10, 2022 5 Comments

#MEAction has sent the following email to editors at New York Magazine to request it remove its fallacious article about Long COVID and ME.

#MEAction’s BOLD Press Strategy Leads to BIG Press Payoff!

November 3, 2022 No Comments

Taking BOLD ACTION with our press outreach has led to national media writing about ME.

Interview with #MillionsMissing France: Rally in Bourges

October 26, 2022 No Comments

#MillionsMissing France has been busy.

financial chart with line rising in green interrupted by coronovirus after which line goes down in red

Long COVID’s U.S. Economic Impact Est. $140-$600 Billion Annually

October 7, 2022 No Comments

Post-viral conditions like ME/CFS provide guidance for estimating the economic impact of Long COVID.

caring african-american medical nurse with hand on shoulder of a black senior patient in headwrap in office

New Diagnostic Codes for ME/CFS in the US ICD-10-CM

October 6, 2022 1 Comment

Code change will ensure US can track diagnosed cases of ME/CFS in newly created electronic health records

#MillionsMissing 2022: Activism From Home Was Beyond Impressive

September 30, 2022 No Comments

There has been so much happening since the #MillionsMissing protest on September 19th. We’ve shared some of our amazing press wins. You tuned into the live stream on Twitter. You saw the article that cover our government’s response. We are thrilled. And we want to take a moment to acknowledge all of the amazing activism