As the year comes to a close and we look over all that we have accomplished, we know that we could not have done this without the amazing work of our #MEAction U.S. state and local advocacy groups. These groups are the foundation of our work as they build support, spread awareness, and advocate for
A study scheduled for our December research roundup entered the limelight yesterday due to an SMC campaign in the UK. The study that has everyone talking is a study at King’s College London called Persistent fatigue induced by interferon-alpha: a novel, inflammation-based, proxy model of Chronic Fatigue Syndrome and features some familiar faces, including Chalder. The
Thanks to another strong turnout from the ME/CFS community, 14 Senators and 28 Congressional Representatives joined together to sign this bipartisan letter to the U.S. Department of Health and Human Services (HHS) in support of people with ME/CFS. The bicameral letter was sponsored by Senator Ed Markey (MA) in the Senate and Congresswoman Anna
We are so excited to announce a new volunteer program at #MEAction! We will now have social media ambassadors! A social media ambassador is a volunteer who is knowledgeable, an enthusiastic supporter of the ME community and #MEAction, and has a strong social media presence. Each ambassador will amplify #MEAction’s social media efforts and share
The holidays are upon us! As you go about shopping for family and friends – or making gift suggestions – don’t forget about these wonderful gifts made by people with myalgic encephalomyelitis (ME). We love to take every opportunity to support our community of crafters, authors, small business owners and artists. Also, #MEAction’s holiday shop
#MEAction activists for myalgic encephalomyelitis (ME) met with the director of the National Institutes of Health (NIH), Dr. Francis Collins, on December 7 to discuss accelerating research in order to more rapidly provide diagnostics and treatments to people with ME. In addition to NIH director, Francis Collins, M.D., Ph.D., other attendees from NIH included the Director
Frontiers in Neurology, an open-access journal, published an article about the UK ME/CFS Biobank this week. This narrative paper describes the journey of how people with Myalgic Encephalomyelitis /Chronic Fatigue Syndrome (ME/CFS) came together with a multidisciplinary team of researchers to conceptualize and establish the biobank, which provides a critical resource for biomedical research into
Listen to the Article: Written by Nancy K Wood / Edited by Eileen Rosenbloom and Marcie Atkinson December 10th will mark the 70th annual Human Rights Day, the anniversary of the adoption of the Universal Declaration. The theme for this decadal celebration is Promote, Engage and Reflect. We in the #MEAction Seniors Connect Facebook
Australian Greens MP, Adam Bandt, formally tabled a petition for Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) in Parliament on Dec. 4th. The Emerge Australia petition asks the National Disability Insurance Agency (NDIA) to collaborate with the ME/CFS community to develop appropriate guidelines for National Disability Insurance Scheme (NDIS) assessors, and for ME/CFS to be added to List B
This Christmas, millions will be missing from parties and celebrations, because of the severity of ME. Yet the National Institute of Health and Care Excellence (NICE, the public body responsible for UK clinical guidelines) have just dismissed legitimate concerns of thousands of people with ME, and their friends, family and allies who emailed them. Staff
