Listen to the article: #MEAction and Solve ME/CFS Initiative (SMCI) are excited to announce a joint partnership for ME/CFS Advocacy Week & DC Lobby Day 2019! The week of meetings with representatives, call-in actions and online events will take place from Monday, April 1 to Sunday, April 7th. The keystone event, Lobby Day 2019, when hundreds
Listen to this article on #MEAction’s Soundcloud here On Thursday afternoon, 24th January, MPs from all parties will be debating a motion put forward by Carol Monaghan MP in the House of Commons. The motion covers biomedical research funding, the suspension of GET and CBT, updated training for medical professionals and unjustified child protection procedures.
Listen to this article on #MEAction’s Soundcloud here This Thursday 24th January, myalgic encephalomyelitis (ME) will be discussed in the main chamber of the House of Commons, as Members of Parliament from all Parties debate a motion on ME put forward by Carol Monaghan MP. We want this debate to be the catalyst for substantive
Stuart Murdoch is the lead singer of Belle and Sebastian. He has had ME for 28 years and he has kindly shared with us this open letter to the UK government ahead of the ME debate on Thursday, 24th January. Dear UK Government, I am one of the 250, 000 people in the UK who
Listen to this article on #MEAction’s Soundcloud here We are delighted that Carol Monaghan MP has managed to secure a debate in Parliament on Thursday afternoon, 24th January. This debate has been confirmed by the Backbench Business Committee and will take place in the Main Chamber. Carol Monaghan has been pushing for a Main Chamber
#MEAction Colorado is organizing a small cohort to join the Women’s March in Denver this Saturday, Jan. 19th. (See details.) We plan to walk the shorter, ADA-friendly route with empty wheelchairs displaying signs that say, “Too ill to be here,” listing names of Colorado people who cannot participate due to ME, and carrying #MillionsMissing banners
The U.S. National Academy of Medicine (NAM) is holding a contest for young people (ages 5 to 26) to submit art, music, writing, videos, dance, etc. related to social determinants of health equity. This is an excellent opportunity for youth with Myalgic Encephalomyelitis (ME) – and their friends and siblings – to raise awareness about the
The National Institute of Health and Care Excellence (NICE) is rewriting the UK ME guidelines. As part of this process, the Forward-ME Group, of which #MEAction UK is a member, has prepared a questionnaire to provide additional evidence on cognitive behavioural therapy (CBT) and graded exercise therapy (GET) to NICE. The new guideline is expected
Australia’s NHMRC has released the ME/CFS Advisory Committee’s draft report for public consultation. The public consultation process will remain open until Monday February 18, 2019.
Research scientist, Dr Mark Guthridge, PhD, from Melbourne Australia created this piechart to show that of these 13 diseases, people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) have the worst quality of life but the least number of scientific publications in 2018. Follow Dr. Guthridge on Twitter.
