All News Archives

Category: All News

A Glorious Moment for the Dutch Government to Step Up to the Plate

March 20, 2019 1 Comment

Today, exactly a year ago, a report by the Dutch Health council expressed the urgent message that immediate intervention is required regarding ME. And last December the current Minister of Medical Care, Bruno Bruins, stated that he would be following up on all accounts. As someone dealing with ME, I am eagerly awaiting the rest of this project, hoping to live a less restricted life.

Carol Head of SMCI to step down

March 15, 2019 No Comments

After five years of advocacy leadership, Carol Head, the President of Solve ME/CFS (SMCI), will be stepping down from her position for health reasons. Head, a graduate of Wellesley and Stanford’s School of Business, contracted ME after a viral infection and was deeply affected for years. However, she describes herself as “95% recovered” and added

Fighting for Rigorous Science and Accurate Reporting

March 14, 2019 1 Comment

On March 13, Reuters published an article, “Special Report: Online activists are silencing us, scientists say“. Reuters used their platform to promote discredited, pseudoscientific treatments and to frame people with ME as violent activists. The article was also picked up in the New York Post, who re-published the content uncritically. #MEAction is urging the ME

Denmark: MPs will Vote whether to Recognise ME as WHO-defined disease!

March 13, 2019 No Comments

This past Tuesday, March 12, Danish Health MPs unanimously agreed on a declaration that will recognise myalgic encephalomyelitis (ME) as a distinct disease, remove it from the “functional somatic syndromes” category, and promote the World Health Organization (WHO) diagnostic codes for ME. Parliament will vote on the declaration this Thursday, March 14th. The vote is

Australia: School Study on Teenagers with Chronic Fatigue Syndrome

March 12, 2019 No Comments

A recent study of Australian teenagers with chronic fatigue syndrome found CFS impacted their development of academic, cognitive and social skills. Students with CFS missed an average of 42% of classes over a term, 37% more than their healthy peers. The study recommends school staff be trained to understand chronic fatigue syndrome and its impact

Meet the Scientists: Australia’s Prof. Don Staines

March 12, 2019 No Comments

‘Meet the Scientists’ is a series of interviews with researchers working on ME and chronic fatigue syndrome. We ask them about their current research and get to meet the people working to improve our health. The series introduces early career researchers through to interviewing scientists and clinicians who have been working on the problems for decades.

Denmark Parliament Holds Query on ME

March 11, 2019 2 Comments

#MEAction supports people with ME in Denmark today as the Danish Parliament discusses the treatment of people with myalgic encephalomyelitis (ME). On Tuesday, March 12th a query about the treatment of people with ME will take place in the Danish Parliament. The question being asked is: What initiatives does the government intend to launch for

Plan for #MillionsMissing Now! Read the Toolkit!

March 8, 2019 No Comments

#MillionsMissing 2019 is fast approaching, and now is the time to get started! Demonstrations calling for health equality for Myalgic Encephalomyelitis (ME) will take place around the globe throughout the week of May 5th – 12th, 2019. We are only two months away! How will you join the movement? Check out our toolkit and determine

Here’s What to Expect for ME Advocacy Day 2019

March 6, 2019 No Comments

Last day to register to attend Advocacy Day in Washington, DC on April 2-3rd! If you are wondering if attending Advocacy Day is for you, here is a document that breakdowns what those two days will look like. The document provides steps to take when planning for the trip and a more detailed schedule of

Amazing Look@ME fundraiser in the UK!

February 28, 2019 2 Comments

On 3rd, February 2019, Look@ME held a supper quiz in North London to raise awareness for myalgic encephalomyelitis (ME). Look@ME is a committee of family and friends coming together to raise awareness for ME. Over 200 people attended this special dinner and quiz night which was inspired by festive quizzes held at the family of our