By Marianne Granger In my forties I was moving forward fulfilling my drive to be a community organizer/communicator/coach (my day job) and also a screenwriter (a remnant of my earlier training and work as a stage actor). Being there for my grown children and reveling in the bliss of holding my grandchildren was a part
As the U.S. Advocacy Manager for #MEAction, I have the great pleasure of connecting fully to my life’s purpose: to be part of igniting the fire for change in the world. While it took me a while to determine that purpose, this truth has always been a driving force in my life. From a young
We need YOU to contact your Senators. Your voice makes all the difference. Our champion, Senator Markey, led two requests that can increase funding for ME/CFS research! 1) Requesting $9.9 million for ME/CFS programs at the Centers for Disease Control (Labor, Health and Human Services, and Education Subcommittee) 2) Adding ME/CFS to the Peer-Reviewed Medical
On June 3rd the CDC held its latest MECFS Stakeholder Engagement and Communication (SEC) Webinar/Conference Call with the ME community. The need for change in the CDC’s stakeholder engagement meetings has been a long time coming. However, this Monday, the majority of the call was a presentation comprised of simple lifestyle advice for ME, including
#MEAction has announced two CDC-related advocacy actions today and yesterday. We are asking you to contact your Senators to increase research funding for ME through the Centers for Disease Control and Prevention (CDC), AND we have also published an open letter to the CDC calling them out for insufficient transparency and accountability in their regular
It is an honor to volunteer and work for #MEAction. #MEAction came to me at a time in my illness when I was finally able to be online, do advocacy work, and find community. To understand why #MEAction’s mission and approach to activism is so important to me, we need to go back to my
#MillionsMissing Glasgow on 12 May, 2019, was a huge success, and took place in glorious sunshine which is fairly unusual for this Scottish city! A crowd of around 400, many of whom had travelled from across Scotland, heard people with myalgic encephalomyelitis (ME) speak about their experience of the illness. There was music from local
Jack Croxall is an author, scriptwriter and blogger living in Nottinghamshire, UK. He fights ME both in life and in prose. Follow him on Twitter, on his blog, and view his books. When you’re dealing with the symptoms of ME every minute of every day, it’s obviously difficult to forget that you’re sick. But I
Senate Resolution passed! This is a great victory for all people with ME.
Listen to the article: #MEAction co-founder, Jennifer Brea, wrote this letter to the community about her remission of ME. Yesterday, I shared the news with our community that all of my symptoms of myalgic encephalomyelitis (ME) are now in remission. This is the outcome of a long journey that began last year with surgery
