All News Archives

#MEAction Volunteers-of-the-Month: MEpedia Stalwarts

August 2, 2019 No Comments

#MEAction is honored to announce our volunteers-of-the-month, Innie and Pyrrhus, who are extremely dedicated contributors to MEpedia, our wiki encyclopedia for the ME and CFS community. Powered by #MEAction, MEpedia is crowdsourcing a knowledge base on the history, science and medicine with the goal to create a literature review so accurate, comprehensive, and technical that it can serve as a

#MEAction Responds to Attacks on ME Community in The Guardian and Psychology Today

August 1, 2019 4 Comments

Listen to the article: Part 1: Part 2: In the past two weeks, The Guardian/The Observer and Psychology Today US have published articles portraying the myalgic encephalomyelitis (ME) community as an angry, misguided mob using social media to denigrate scientific research. Both articles focus on the criticism that Dr. Michael Sharpe, one of the

Announcing the Art Picks for Postcards to Doctors

July 25, 2019 3 Comments

#MEAction is launching an initiative that will allow you to help educate your local clinicians, called Postcards to Doctors! Postcards to Doctors will work a lot like Postcards to Voters. The Postcards to Voters campaign leveraged handwritten postcards to individuals in order to encourage them to vote. Postcards to Doctors will use the same model

UK Teenager with Severe ME Threatened with Forced Institutionalization

July 24, 2019 No Comments

The ME community is rallying around 17-year-old Jehan “Gigi” who has been hospitalized with severe myalgic encephalomyelitis (ME) in the UK, and is now being threatened with being sectioned – forced institutionalization – against her will to a psychiatric hospital for her inability to eat, speak or walk due to the effects of severe ME

#MEAction Seeks Applicants for Blue Ribbon Fellowship at Bateman Horne Center

July 24, 2019 2 Comments

Bateman Horne center is opening applications for the #MEAction Blue Ribbon Fellowship. Announcing clinical clerkship opportunity for 4th-year medical students, med-peds, internal medicine and family practice residents. We are delighted to announce the #MEAction Blue Ribbon fellowship at the Bateman Horne Center (BHC) with Dr. Lucinda Bateman. The clerkship/rotation will consist of one month spent

Announcing #MEAction’s Blue Ribbon Fellow: Investigating the Role of Folate in ME

July 24, 2019 No Comments

The #MEAction Blue Ribbon Fellowship is excited to announce that medical student, Christopher Larrimore of Nova Southeastern University, has been selected as one of our fall fellows to support his continued research into myalgic encephalomyelitis (ME). The #MEAction Blue Ribbon Fellowship, now under the stewardship of #MEAction, supports the work of medical students to undertake

Australia’s ME/CFS Advisory Committee Releases Final Report

July 22, 2019 No Comments

The final report from Australia’s National Health and Medical Research Council’s (NHMRC’s) ME/CFS Advisory Committee, established in late 2017, has been released. The committee was tasked with advising NHMRC’s CEO on current needs for research and clinical guidance for ME/CFS in Australia.

Sign a petition to ask the EU for funding for biomedical research

July 17, 2019 12 Comments

Hello EU! The best way to combat a hopeless situation is to act! Please help us by signing a petition that asks the EU for increased funding for biomedical research into ME. There are about 2 million ME patients in the EU. That’s only an estimate, because reliable figures aren’t even available. But we know we

Aid Without Asking: How to Support Someone with ME

July 10, 2019 No Comments

The love of my life battles ME/CFS. It’s a disease that my father has also struggled with since I was a boy, so it’s one I know well. I knew life wasn’t going to be simple when we met, but I dove in head-first anyway. I can’t say it’s been easy, but I can definitely

Photographer Seeking Bay Area Subjects to Tell Story of ME

July 9, 2019 No Comments

A Bay area-based photographer is seeking people with myalgic encephalomyelitis (ME) who are willing to share their stories and to be photographed for his new awareness raising initiative. Photographer Mark Tuschman’s work can be seen on his website, his book project on the lack of human rights for women and girls and through his recent project on

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