Category: All News

Degrees of Distance

Many of us (housebound/bedbound) worry about dear ones who are sick, infirm, or struggling, esp. if we live afar. We feel not being there when we need to be, want to be, no matter what the circumstances, as failed fidelity, incurring a debt of love.

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Race, Ethnicity and M.E.: Why We Need to Build a More Inclusive Movement and Why it Matters.

Values & Policy Initiative Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in a statement of principles and values as well

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Cochrane Analysis: What’s Here, What’s missing, Conclusions

Exercise therapy for chronic fatigue syndrome Lillebeth Larun, Kjetil G Brurberg, Jan Odgaard-Jensen, and Jonathan R Price Editorial group: Cochrane Common Mental Disorders Group As of October 2, 2019, the Cochrane review of GET in ME has been re-issued after the evidence was reassessed. You can read the whole review and a quick summary by

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Are you Disabled? How does ME fit into the Disabled People’s Movement?

Values & Policy Initiative Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in a statement of principles and values as well

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Volunteer of the Month: An Ally of Many Talents

Malcolm Bailey from the UK has bailed us out with his tech savvy skills on more than one occasion. We are so lucky to be able to rely on his dependable help for projects both small and large. As he describes it, ” As a healthy ally I’ve done everything from editing videos, ordering and distributing

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Why We Must Build Coalitions to Strengthen our Movement

Values & Policy Initiative Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in a statement of principles and values as well

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Inside / Outside Activism: Why We Must Shout in the Streets and Sit at the Table.

Values & Policy Initiative Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in a statement of principles and values as well

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ME Activist Testifies before EU Parliament

Today Evelien Van Den Brink spoke powerfully and brilliantly to the Committee on Petitions in the European Parliament from her stretcher. Evelien laid out both an emotional and scientific appeal for biomedical funds for ME. She ended her appeal by saying “On behalf of all patients, I am asking you, please don’t look away. We

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Colorado Activist Introduces Rotary Club Resolution for ME

Colorado activist, Jim Lutey, has introduced a Rotary Club resolution to encourage research, education and funding for myalgic encephalomyelitis (ME!) [maxbutton id=”17″ url=”http://www.meaction.net/wp-content/uploads/2019/10/me-cfs-resolution-proposed-by-dist.-5440-3-13-2019-4-1.pdf” text=”Read the Resolution” ] The resolution’s purpose is to “leverage Rotary’s worldwide reputation and expertise on polio eradication to raise awareness on the need to educate the public and medical practitioners on

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Cochrane Releases Problematic Review on ME/CFS

The revised Cochrane Review on ME/CFS was released today, October 2, 2019. We will share a more in-depth analysis shortly.  However, we must immediately emphasize that #MEAction does not support graded exercise therapy due to serious risk of harms to people with ME, and that we are deeply concerned about the conclusions of this review. 

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