Sad News From Our Community — Content Warning
December 22, 2023
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We are sharing some sad news. Please put your health first. Content warning for sharing the loss of a community member.
Category: All News
CANARY CORPS – Alison’s Story
December 4, 2023
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Have you registered yet to join us this Wednesday, December 6th at 4pm ET / 1pm PT for a community presentation introducing the Canary Corps program? Ahead of Wednesday’s event we wanted to share with you Alison’s story. Alison Sbrana will be co-presenting this event, and much of the design of Canary Corps has been
#MEAction Shares Our Thanks for Your BOLD ACTIONS
November 21, 2023
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During this time of thankfulness and gratitude, #MEAction staff wants to share what BOLD ACTIONS we are thankful our volunteers and community have taken throughout the year. We thought we could reflect together on all that we have accomplished this year and how every single one of us is important in this powerful community. A
CANARY CORPS – New Grassroots Program Coming Soon
November 6, 2023
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I’ve got exciting news to share! In early 2024, #MEAction will launch a new grassroots, peer-run program in the United States to help people with ME, Long COVID, and other infection-associated chronic illnesses find and access local services and support for people with disabilities. This will be an innovative and radical program that is run
#MEAction and Long COVID Justice Issue Press Statement about NIH Failure of Long COVID
August 23, 2023
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#MEAction and Long COVID Justice issued a press statement yesterday about our communities’ deep concerns regarding the rollout of RECOVER’s clinical trials for Long COVID. As studies show half of the Long COVID community meets the diagnostic criteria for ME/CFS – and our core symptoms overlap – RECOVER’s research has major implications for our community.
#MEAction’s Summer Work Heats Up
August 16, 2023
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Halfway through summer, we have so much to report about our immense, day-to-day work advocating for M.E., for you, and for each other. On the medical front, our ongoing, grant-funded project with Mayo Clinic Rochester continues to transform medical education at Mayo. Together, we have updated the ME/CFS homepage, written a Concise Clinical Review article that will
Mt Sinai PEM Study Now Recruiting
August 14, 2023
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Dr. Natelson at Mt. Sinai is recruiting people to study PEM. Reimbursement for travel and time will be available.
Severe ME Artist Project 2023 — Gallery
July 31, 2023
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A collection of works by artists with severe ME.
#MEAction Calls for ME & Long COVID to be Part of COVID-19 Task Force
July 25, 2023
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Urge Congress to hold our federal health and research agencies accountable for ME & Long COVID.
#MEAction & Body Politic: We Are Stronger Together
July 20, 2023
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Announcing #MEAction and Body Politic’s new collaboration: we are excited to announce that #MEAction will now host Body Politic’s advocacy work as a project of #MEAction. Many of you know that Body Politic’s support group has officially closed. This was a devastating loss to the community – we know so much of the Long COVID