On Tuesday 24th August at 5pm, we’re holding a community Q&A, and will be joined by two of the NICE committee members, who have spent almost 3 years working on the new ME/CFS guideline.
Our community is fighting every day to bring hope, health and justice to people with myalgic encephalomyelitis (ME). In August we especially take time to honor the 25 percent living with the most severe form of this disease and remember those who have died from ME. August 8th marks the Severe Myalgic Encephalomyelitis (ME) Day
Join IACFS/ME, the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis and people with ME, supporters, clinicians, and researchers for the 2021 IACFS/ME Virtual Conference, held August 19-21, 2021. Attendees will have access to three days of virtual workshops, lectures, and updates on recent developments in ME/CFS research. Some of the conference events include: “Orthostatic Intolerance
Join #MEAction as we chat with Rachel Riggs to discuss her forthcoming cookbook, Clean Eating Foodist, whose recipes are designed for food-sensitive people with ME such as herself.
A collection of works by artists with severe ME.
Darren Randon, a poet, qualified teacher, community builder, facilitator, host and co-founder of Well Versed Ink from Thornton Heath, is launching a new group aimed at supporting Black and Black-mixed people with ME and/or long Covid in the UK. The group plans to create a safe space to share experiences and create community with the
#MEAction CA’s advocacy work resulted in getting an article & interview published in Medical Board of CA’s newsletter!
#MEAction is excited to announce our Severe ME Artists Project which will feature work from those within the severe ME community in honor of Severe ME Day on August 8th! This project will be an opportunity for those with severe ME to showcase their artwork (whether it be writing, photography, drawing, singing, or any other medium that illustrates their talents) with multiple ways to participate based on a person’s energy levels.
There is so much going on in our wonderful community that we wanted to make sure you did not miss out on the latest successes, events, and updates! Take a look at #MEAction’s community round-up below.
Help prioritise ME/CFS research by filling in this survey A major UK project is looking for your input. They want to know what research you think should be funded in the future, and the deadline for adding your ideas is fast approaching. Your responses must be in by Monday 5th July 2021. Find out more
