Over the past year, the #NotJustFatigue website, created by Elizabeth Ansell, releases a 10-part, documentary style, short form video series on different aspects involved in living with ME. Titles of the videos include topics such as: You Have No Idea How Serious This Is, Nobody Believes ME, and It’s Not Hysteria: It’s Sexism. In these
Back in September, #MEAction Georgia State Chapter partnered with the Centers for Disease Control and Prevention (CDC) and Emory School of Nursing to host, Voice of the Patient: A Panel Discussion with #MEAction Georgia. This event was a continuation of #MEAction Georgia’s #MillionsMissing 2024: #TeachMETreatME programming. Erin Lee and Liz Burlingame of the #MEAction Georgia
#MEAction and Body Politic collaborated last spring, with a new national telehealth program, Home Test to Treat. We are now able to share initial findings from the program! Here are some highlights: 80K + enrolled in the program across the country! 40K + test distributed 6K + individuals treated for COVID-19 or flu 5.6K+ organizations
Our End of Year Fundraiser: Our Community Is Out of This World is going strong! We have crossed over the 50% threshold and are working our way towards $200,000! As we shared yesterday, we have been busy fighting for you in 2024 and we do not plan on stopping in the New Year! To ensure
#MEAction is fighting for you, each and every day. We have undertaken so many incredible projects this year, but we need your support to keep the fight going! We are 50% towards our fundraising goal, and need your help to get us over the finish line! Donate Today We are fighting for clinicians who can
We only have 17 days left for our End Of Year Fundraiser! Time is flying by! We still have about $100,000 to raise to reach our goal. That is a heavy lift, but we know each donation can make a difference. Can you donate today to help #MEAction Go Boldly through 2025? Donate Today! Now
As #MEAction prepares for the year ahead, I’m thrilled to share with you a few highlights from the incredible advocacy projects our staff has undertaken this past year. As you prepare for the holidays, I humbly ask that you consider making a gift to #MEAction today to keep our work going strong! Donate We Organized
Volunteers from #MEAction Scotland and Long Covid Scotland talked to over 60 MSPs (Members of the Scottish Parliament) at an Information Stall in the Scottish Parliament from 5th-7th November. Ben Macpherson MSP for Edinburgh Northern and Leith sponsored the stall on behalf of #MEAction Scotland as we aimed to make MSPs aware of the desperate
Given the rapidly changing landscape at the federal level, we recognize that the road ahead may bring some changes for patient advocacy. Even in this evolving environment, we’re excited to share some positive news: #MEAction and the Mayo Clinic have been awarded the Sigma 2024 American Nurses Credentialing Center Evidence-Based Practice Implementation Grant awarded by
The RECOVER-Treating Long COVID (RECOVER TLC) Kick-off Meeting was Sept 23-25 in person and over Zoom. I had the privilege of attending over Zoom and Jaime Seltzer, #MEAction’s Scientific Director, represented the needs of the ME community in person and as an invited member of a panel on clinical trial design. There were many speakers
