People disabled by ME and Long Covid across the UK send out an SOS. It’s time to send out our SOS signal, if we want to have funded research. May 12th, is Myalgic Encephalomyelitis Awareness Day. On this day, the #MillionsMissing of people with myalgic encephalomyelitis (ME) gather to demand an increase in research and
For #MillionsMissing 2024, #MEAction is sending out an SOS.
The White House is terminating funding for NIH RECOVER grants awarded in 2022 and 2023 for Long COVID.
I have been honored as I have watched our volunteers share what makes them powerful and who they see power in for Women’s History Month. I hope you will look back on what has been shared so far! This final week we are focusing on our community. And I have made no secret about how
Ian Simon, the head of the Long COVID Office at Department of Health and Human Services (HHS), released the following statement to coworkers: Dear Colleagues, We are writing to let you know that the Office of Long COVID Research and Practice will be closing as part of the administration’s reorganization coming this week. We are
We are writing to you with an urgent call to action. The Trump administration has cut funding for the Center for Solutions for ME/CFS at Columbia University as part of a broader $400 million funding termination at the university. This devastating decision includes the loss of NIH funding for one of the nation’s few Collaborative Research
#MEAction has been fighting alongside the Long COVID community since 2020 – we know that our futures are inextricably linked.
Following another busy and productive year, #MEAction Scotland is publishing our 2024 Impact Statement today, which covers the 2024 calendar year. It reports on our work to campaign for effective support, create stronger advocates and raise awareness. The statement brings together some key successes over the year. Some highlights include: The work continues towards a
Why I joined more than 1,000 protesters at a Stand Up for Science rally in Madison, WI to fight for the funding of critical science.
#MEAction invites you to experience Pillow Crafters Showcase: Healing Themes—The Wildflower Process on Wednesday, March 26th, 2025 at 11am PT/2pm ET/6pm GMT, a showcase of resilience, creativity, and the many ways we reclaim our identities after an ME/CFS diagnosis. RSVP Here Through the symbolism of a wildflower, participants have explored themes such as grief, transformation,
