Advocacy Archives

NICE Called for Evidence: Read #MEAction UK’s Response

October 17, 2019 2 Comments

The National Institute for Health and Care Excellence (NICE) are re-writing their guidelines on ME. As part of this they issued a call for evidence relating to three topics. #MEAction UK has now submitted our full response, collecting studies, surveys and data from multiple sources. [maxbutton id=”23″ url=”http://www.meaction.net/wp-content/uploads/2019/10/MEAction-submission-to-the-NICE-ME-CFS-call-for-evidence-consultation.pdf” text=”Read the full submission” ] #MEAction

Status Update On #MEAction’s Congressional Work

October 11, 2019 No Comments

#MEAction’s Congressional Committee team has been very busy this year. We want to give you a status update and alert you to an ongoing action you can pursue. Appropriations Since March of this year, #MEAction, in partnership with the Solve ME/CFS Initiative and MassME/CFS & FM Association, has been working to increase funding for ME/CFS

Are you Disabled? How does ME fit into the Disabled People’s Movement?

October 9, 2019 15 Comments

Values & Policy Initiative Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in a statement of principles and values as well

Inside / Outside Activism: Why We Must Shout in the Streets and Sit at the Table.

October 3, 2019 3 Comments

ME Activist Testifies before EU Parliament

October 3, 2019 No Comments

Today Evelien Van Den Brink spoke powerfully and brilliantly to the Committee on Petitions in the European Parliament from her stretcher. Evelien laid out both an emotional and scientific appeal for biomedical funds for ME. She ended her appeal by saying “On behalf of all patients, I am asking you, please don’t look away. We

Colorado Activist Introduces Rotary Club Resolution for ME

October 3, 2019 No Comments

Colorado activist, Jim Lutey, has introduced a Rotary Club resolution to encourage research, education and funding for myalgic encephalomyelitis (ME!) [maxbutton id=”17″ url=”http://www.meaction.net/wp-content/uploads/2019/10/me-cfs-resolution-proposed-by-dist.-5440-3-13-2019-4-1.pdf” text=”Read the Resolution” ] The resolution’s purpose is to “leverage Rotary’s worldwide reputation and expertise on polio eradication to raise awareness on the need to educate the public and medical practitioners on

Postcards to Doctors returns!

October 1, 2019 4 Comments

Great news! Postcards to Doctors has relaunched as of today, October 1! You can now request new postcards and addresses here. If you requested postcards or addresses during the month of September, we’ve resumed generating addresses and sending postcards as of today, and you should receive yours within the next few weeks. Want to learn

Why Civil Disagreement and Respect are Essential to the ME Movement

September 29, 2019 1 Comment

VALUES & POLICY INITIATIVE Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in a statement of principles and values as well

Why We Must Build an Open, Grassroots Movement

September 25, 2019 3 Comments

Listen to the article: Values & Policy Initiative Learn more This article is part of our Values & Policy Initiative, a six-month long process for the community to come together to learn and discuss our core values, tactics and positions so that we are more unified in our work as a large, diverse community. This process will culminate in

Brussels will Discuss EU Petition to Fund Biomedical Research for ME

September 18, 2019 4 Comments

Great news! Remember the petition that asks the EU to fund biomedical research on ME? It will be discussed at the meeting of the Committee on Petitions on October 3rd 2019 in Brussels! It is scheduled for discussion at around 11:05 CEST. Francis and Evelien have been working on this project for over a year

Category: Advocacy