#MillionsMissing 2025: Sending Out An SOS
April 2, 2025
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For #MillionsMissing 2024, #MEAction is sending out an SOS.
Category: Advocacy
Join the Fight for Medicaid & Telehealth
March 26, 2025
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We want to provide you with an update about where we stand with the federal administration massively cutting Medicaid and threatening to get rid of Telehealth extensions. We are so grateful for the actions that you have taken with us to fight to protect Medicaid and Telehealth but we still have a long road ahead
Office of Long COVID at HHS Closing
March 25, 2025
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Ian Simon, the head of the Long COVID Office at Department of Health and Human Services (HHS), released the following statement to coworkers: Dear Colleagues, We are writing to let you know that the Office of Long COVID Research and Practice will be closing as part of the administration’s reorganization coming this week. We are
Trump Cuts Funding for ME/CFS Centers at Columbia University
March 20, 2025
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We are writing to you with an urgent call to action. The Trump administration has cut funding for the Center for Solutions for ME/CFS at Columbia University as part of a broader $400 million funding termination at the university. This devastating decision includes the loss of NIH funding for one of the nation’s few Collaborative Research
Long COVID Awareness Day
March 14, 2025
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#MEAction has been fighting alongside the Long COVID community since 2020 – we know that our futures are inextricably linked.
Why I Joined a Stand Up for Science Rally
March 12, 2025
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Why I joined more than 1,000 protesters at a Stand Up for Science rally in Madison, WI to fight for the funding of critical science.
Press Release: Advocates Urge Administration to Reinstate Long COVID Advisory Committee
March 6, 2025
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Press Contact: #MEAction: press@meaction.net Patient & Expert Voices Must Be Heard: Advocates Urge Administration to Reinstate Long COVID Advisory Committee #MEAction and the Patient-Led Research Collaborative – leading organizations advocating for people with Long
Cochrane Collaboration Cancels Independent Analysis of Exercise Therapy Review for ME/CFS
January 24, 2025
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#MEAction is raising the alarm about Cochrane Collaboration’s sudden decision to abandon an independent analysis of the 2019 review of exercise therapy for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Cochrane has also altered the date of publication to 2024 to make the review appear current when, in fact, its sources are all 10 years old or
The Year Ahead
January 23, 2025
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As we embark on the new year, we are excited to share updates about #MEAction’s advocacy projects and community programs with you! While we focus on advancing support, research, and treatments for people with ME, we’re also closely monitoring changes to public health systems under the incoming administration, and will pivot as needed to fight
Why You Should Gift to #MEAction this Season
December 12, 2024
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As #MEAction prepares for the year ahead, I’m thrilled to share with you a few highlights from the incredible advocacy projects our staff has undertaken this past year. As you prepare for the holidays, I humbly ask that you consider making a gift to #MEAction today to keep our work going strong! Donate We Organized