Urgent Action Needed: Demand NIH Fund the ME/CFS Research Roadmap!
October 10, 2024
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Category: Advocacy
#TeachMETreatME: Share the Mayo Clinic CME With Your Doctor
August 30, 2024
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We encourage you to share the Mayo Clinic Proceedings Continuing Medical Education (CME) course on ME/CFS with your doctor! It is a wonderful opportunity for your clinician to get their continuing education credits, and learn about ME at the same time! Clinicians are often appreciative to receive these materials! We’ve created an email template for you to
#MEAction Awarded 3-Year Grant by Minnesota Department of Health Long COVID Program
July 30, 2024
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Breaking news! #MEAction has just been awarded a 3-year grant by the Long COVID Program of the Minnesota Department of Health (MDH) to address the impacts of Long COVID, ME/CFS, and related conditions, across the state and to serve disproportionately impacted communities. #MEAction’s work will focus on better connecting Minnesotans with ME/CFS, Long COVID, and
Pride Is Valid No Matter How One Celebrates or Experiences It
June 25, 2024
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In honor of Pride Month, #MEAction is sharing a heartfelt message from our board member, Jennifer England, about what Pride means to her and her wife who lives with severe ME. My wife and I have both been queer our whole lives, but in the 70s that was the quiet part you didn’t say out
Questions to Ask Prospective MPs About ME/CFS
June 4, 2024
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In the next few weeks, candidates will be knocking on doors seeking votes for the upcoming UK Election. It’s important that candidates from all parties are made aware of the challenges facing people with ME and Long Covid. It can be a little daunting to be unprepared so here are some questions you might want
#TeachMETreatME: Celebrating An Impactful Campaign
May 17, 2024
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We are THRILLED to share the rolling successes of our #TeachMETreatME campaign with you, as we report back on the amazing medical education events that have taken place so far – with many more to come in the upcoming months! (And don’t miss the global #MillionsMissing events later in the article!) Over the past several
#MillionsMissing Week is Here: #TeachMETreatME in Action!
May 7, 2024
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We are excited to announce the kick-off of #MillionsMissing 2024 – our ongoing campaign to Teach ME and Treat ME by educating medical providers across our nation’s hospital systems and medical schools about myalgic encephalomyelitis (ME). Throughout the spring, summer and fall, #MEAction teams are hosting 13 medical education events to encourage medical providers to
#MEAction’s Jaime Seltzer Selected for TIME100 Health 2024
May 2, 2024
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We are thrilled to share with you that Jaime Seltzer, #MEAction’s Scientific Director, has been selected for TIME100 Health 2024, TIME’s new annual list of 100 individuals who most influenced global health this year! This is a huge honor based on years of work fighting for equity for people with ME. We intimately know the
Interview With Lauren Saikkonen – Author of Invisible Illness: Coming of Age, Chronic Illness, and a Mother’s Will to Survive
April 29, 2024
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#MEAction is once again thrilled to share a new book, Invisible Illness: Coming of Age, Chronic Illness, and a Mother’s Will to Survive, with you by author Lauren Saikkonen! This book is an autobiography that covers Lauren’s entire life, but heavily focuses on her battle with Ehlers-Danlos syndrome, ME, and fibromyalgia. You can purchase this
#MEAction’s NIH Study Response
February 29, 2024
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NIH’s recent paper on ME/CFS elicited strong reactions from the community.