#myMEstory
July 2, 2015
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As part of the #chilliMEchallenge we are encouraging people to tell us their #myMEstory and create awareness by putting a voice and a face to this illness.
Category: Actions
Into the Light – An Artist book in a box, by Corina Duyn
June 13, 2015
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The Artist book consists of a set of loose A5 sheets, gathered in a custom-made wooden box, reflecting on life with chronic illness seen through art and nature.
Help 6000 ME/CFS sufferers in New Zealand get a field worker
June 7, 2015
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We humbly ask for the community’s help to fundraise for a field worker in Auckland, New Zealand. We hope to set a precedent for the international community, providing a platform for other countries to campaign for their own field workers
#MEawarenesshour – Time To Put ME In The Spotlight Using Twitter
June 4, 2015
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Every Wednesday #MEawarenesshour is a set time to tweet and share stories about the illness, personal experiences, research, funding events, charities, artwork and poems on the subject, general awareness and hopefully put right a few misconceptions.
Mike's EU Marathons: Raising Myalgic Encephalomyelitis Awareness across Europe
June 3, 2015
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28 Marathons for Myalgic Encephalomyelitis Awareness and Research I’ll be running a marathon in each of the 28 EU member countries to raise awareness and much needed funds for biomedical research into ME & for the charity Invest In ME I’m aiming to raise funds and awareness for biomedical ME research across the 28 countries
Take The Chilli M.E. Challenge
May 16, 2015
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Take The Chilli M.E. Challenge. The Chilli M.E. Challenge is an advocacy initiative started by four girls who met on Facebook and decided that something had to be done to spread awareness to those that don’t have ME and also to raise much needed funds for biomedical research for Myalgic encephalomyelitis (ME)/ Chronic Fatigue Syndrome
Artists with ME/CFS/FM/SEID Online Juried Art Exhibition
May 16, 2015
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www.meagain.org
Help DePaul Researchers Learn About Post-Exertional Malaise
May 14, 2015
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We are conducting a research study because we are trying to learn more about what occurs before and during post-exertional malaise for individuals with Myalgic encephalomyelitis (ME) or chronic fatigue syndrome (CFS), as well as how these individuals define the term post-exertional malaise. We are asking you to be in the research because you have a diagnosis of ME or CFS, speak English, and are 18 years of age or older. If you agree to be in this study, you will be asked to complete a survey. The survey will include questions about your post-exertional malaise experiences related to your ME or CFS. We will also collect some personal and demographic information about you, such as age, gender, race, marital status, income, level of schooling, disability information, and work status. The full survey can be completed online. If there is a question you do not want to answer, you may skip it.
Crowd funding for The OMF ME/CFS Severely Ill Big Data Study
May 13, 2015
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As part of our OMF End ME/CFS Project, this study will conduct a comprehensive, “Big Data,” analysis on severely ill ME/CFS patients with the goal of finding sensitive and distinctive molecular biomarker(s). Very little research has been done in the bedbound. severely ill patients because they are hard to reach. By looking at the simple
The $10 Challenge For Columbia CII ME/CFS Research
May 10, 2015
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The Microbe Discovery Project began as a patient-driven crowdfund to raise funds for world-class researchers Dr Ian Lipkin and Dr Mady Hornig at Columbia University’s Center for Infection and Immunity (CII), New York. Research into ME/Chronic Fatigue Syndrome is sorely needed and there is a paucity of research into the illness. Patients raised a whopping