Category: Actions
Stage Your Screening of Forgotten Plague!
September 1, 2015
9 Comments
We’re proud to announce that our new partnership with Tugg is now LIVE! Tugg is a “theatrical-on-demand” platform that gives documentary fanbases like ours access to 90% of the movie theaters in the United States. Tugg helps you book a movie theater near your home, advertise, sell tickets, and stage a high-caliber screening to build
Sign the Petition: Need NIH Funding to Cure M.E. for Millions
September 1, 2015
No Comments
AIDS Research took a death sentence and made it a manageable disease. ME-CFS needs the same level of effort to solve this worse disease that often is lifelong. Request $250M per year for ME-CFS R&D, so NIH can stop discrimination against ME-CFS and related diseases.
Couples Needed for Home-based Research Study on Stress and CFS
August 28, 2015
3 Comments
The VideoHealth study is currently in its final months of national recruitment for participants and is seeking to enroll eligible patients and their partners. For more information please call 305-355-9200 and press option 5, or email us at [email protected].
Petition: Get Sweden To Support International ME/CFS Projects
August 27, 2015
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I want Sweden to contribute to international research for ME / CFS – it will also help you! Sweden has about 40 000 people suffering from ME / CFS. I hope that Sweden can contribute to the Open Medicine Foundation and Lipkin / Hornig study.
DePaul Fatigue Study: ME, CFS, MS, Lupus, and Cancer
August 12, 2015
5 Comments
DePaul University researchers invite persons with ME, CFS, MS, Lupus, and Cancer to participate in a voluntary research study to determine which symptoms may be commonly experienced by individuals in multiple fatiguing illness groups, and which symptoms may be unique to each illness. Participation includes completion of a confidential online questionnaire, which takes approximately 45 minutes to complete.
Help Shape Research in the NHS
August 10, 2015
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The UK’s National Institute for Health Research (NIHR) is asking for suggestions from patients, carers and members of the public for tests and treatments that need to be researched.
Get ME/CFS on HBO's "Last Night Tonight with John Oliver"
August 10, 2015
17 Comments
John Oliver, please talk about ME/CFS Funding! Please sign up/login to HBO’s “Last Week with John Oliver” page to “like” and comment on the topic idea of funding for ME/CFS: Ask John Oliver to talk about ME/CFS Funding! For those of you not familiar with “Last Week Tonight with John Oliver” – it has become
Suffering the Silence Campaign for M.E.
August 9, 2015
No Comments
Write “M.E.” on your left hand or forearm (if you do not want to use marker on your skin, you can improvise with a piece of paper as many have done). Cover your mouth with your hand and make sure to look into your camera lens. Upload to Twitter or Instagram with the hashtags: #sufferingthesilence #MEAction and #severeme. If you are on Facebook, you will need to post to The #MEAction Network page AND use the hashtags above.
Sign a petition to Reinstate Federal Research Funding for ME/CFS
August 7, 2015
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Help Find a Cure for Whitney Dafoe and others like him!
Hearing that funding has been reduced to nothing is heartbreaking. Please hear out these words from something who is suffering, and help him: