Category: Actions

#MEAction Google Hangout (Friday October 30th)

We’d love to start hosting periodic calls to allow #MEAction members to chat informally with co-founders Jen Brea and Beth Mazur – to ask big picture questions about the platform, brainstorm strategy, and offer suggestions for future directions. As we use Google Hangout for these calls, they are strictly limited to eight participants in addition

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Crowdsourcing information for a pharmacy M.E. resource

I’m working with a national M.E. charity, Action for M.E., as their Volunteer Pharmacist, providing information about pharmacy services, writing health and pharmacy-related articles, and putting together a resource for pharmacy professionals about M.E. I’m gathering thoughts and suggestions from both people with M.E. and pharmacy professionals because it’s important that the resource includes a full picture of M.E.

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Poll: Should #MEAction sign this NIH Letter?

Bob and Courtney Miller are writing a letter to Francis Collins, Director of the National Institutes of Health (NIH) and Sylvia Burwell, US Secretary of Health asking that the NIH: Assign ME/CFS to a strong, well-funded Institute like NINDS, to enable strategic planning and structural accountability. Fund a mix of intramural and extramural research (as NIH does for

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Help Us Put a Face on ME/CFS!

The Solve ME/CFS Initiative has launched a campaign to help increase awareness of —and ultimately research funding for—ME/CFS. The campaign, “Humans of ME/CFS,” is a takeoff of the popular “Humans of New York” photoblog and Facebook page. The aim of the campaign is to show the faces and stories of those suffering from ME/CFS worldwide

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Join Team Solve – Fundraising for ME/CFS Research

It will take more than people with ME/CFS to achieve a world free of ME/CFS. It will take a committed team of many rallying together to effect change – Families, loved ones and friends coming together to make a difference and fund progress. Join Team Solve and help us Solve ME/CFS!

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