Australia: Write to North Sydney by-election candidates
November 30, 2015
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Australia: Write to the North Sydney by-election candidates about ME.
Category: Actions
Donate to help SMCI receive a $50K Challenge Donation by Dec 1!
November 30, 2015
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Help SMCI meet our challenge to receive $50,000 by making a Giving Tuesday donation.
Join an #MEAction Group
November 29, 2015
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Announcing #MEAction groups We are thrilled to formally announce a new feature we’ve had running in the background these last few months: #MEAction groups. As many of you know, Beth and I have been deeply inspired by the legacy of ACT UP and its grassroots ethos. Decisions were made democratically but decisively in large group meetings,
Help Simmaron Fund the Rise of ME/CFS Research!
November 29, 2015
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Simmaron Powers Change in 2015! 2015 marks a powerful turning point for ME/CFS patients, and it’s all happening because of you! Patients, advocates and researchers have worked tirelessly to elevate our disease at the U.S. National Institutes of Health. On October 29, Dr. Francis Collins, Director of NIH, announced promising changes to the federal research
#MEAction Google Hangout: Australia
November 25, 2015
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This is the fifth of our new series of periodic calls for #MEAction co-founders Jen Brea and Beth Mazur to meet other activists “face to face.” It’s an opportunity to ask big picture questions about the platform, brainstorm strategy, and offer suggestions for future directions. We’d love this call to especially focus on connecting with
Petition: Investigate PACE, remove CBT and GET from treatment guidelines
November 24, 2015
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#MEAction has just launched a major new petition to get the US Department of Health and Human Services (HHS) to throw its considerable weight behind calls to The Lancet to have the notorious PACE trial independently re-analysed. The petition also asks the HHS to take immediate steps to protect ME/CFS patients both in the US
New Zealander's: Provide feedback to the Ministry of Health
November 24, 2015
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Background The Ministry of Health (MoH) is seeking feedback on its update to the New Zealand Heath Strategy. Let’s ensure the ME/CFS community is heard – express your views on the forum now! https://futuredirection.health.govt.nz/join-the-discussion/people-powered/are-there-health-services-geared-your-needs-and-lifestyle What you can do The MoH is asking: “are there health services geared towards your needs and lifestyle?”. This is a
#MEAction Google Hangout: Ireland
November 23, 2015
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This is the fourth of our new series of periodic calls for #MEAction co-founders Jen Brea and Beth Mazur to meet other activists “face to face.” It’s an opportunity to ask big picture questions about the platform, brainstorm strategy, and offer suggestions for future directions. We’d love this call to especially focus on connecting with
Poll: Letter to thank NIH for Announcement
November 17, 2015
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November 20th Update: Thanks to all of our members who voted in this poll. A significant minority of our members voted against #MEAction signing the letter, so we have decided to not formally sign the letter. We are still working out what policies make sense and really appreciate all of our members’ flexibility and openness
Donate to help SOLVE ME/CFS INITIATIVE receive a $50K Challenge Donation by Dec 1!
November 11, 2015
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Help SOLVE ME/CFS INITIATIVE meet our challenge to receive $50K by making a Giving Tuesday donation.