The United States Department of Labor is proposing new regulations about certain disability claims. Tell them you support this.
This is the sixth of our new series of periodic calls for #MEAction co-founders Jen Brea and Beth Mazur to meet other activists “face to face.” It’s an opportunity to ask big picture questions about the platform, brainstorm strategy, and offer suggestions for future directions. We’d love this call to especially focus on connecting with
It’s been an amazing year in ME advocacy. In countries all around the world, patients are rising up with a new energy (if that’s the right word!) of creativity and collaboration. There is a growing sense that we are living in a moment that is bigger than any one advocate or organization. That we are at the
Medline Plus, NIH’s web site for patients, just published an article from health news distributor Healthday, based on the recent, discredited U.K. PACE study. The new article states that “cognitive behavioral therapy and graded exercise therapy are among the best available treatments for extended relief” of ME/CFS. Fortunately, if you want to file a complaint about this article, it’s super easy.
Australia: Write to the North Sydney by-election candidates about ME.
Help SMCI meet our challenge to receive $50,000 by making a Giving Tuesday donation.
Announcing #MEAction groups We are thrilled to formally announce a new feature we’ve had running in the background these last few months: #MEAction groups. As many of you know, Beth and I have been deeply inspired by the legacy of ACT UP and its grassroots ethos. Decisions were made democratically but decisively in large group meetings,
Simmaron Powers Change in 2015! 2015 marks a powerful turning point for ME/CFS patients, and it’s all happening because of you! Patients, advocates and researchers have worked tirelessly to elevate our disease at the U.S. National Institutes of Health. On October 29, Dr. Francis Collins, Director of NIH, announced promising changes to the federal research
This is the fifth of our new series of periodic calls for #MEAction co-founders Jen Brea and Beth Mazur to meet other activists “face to face.” It’s an opportunity to ask big picture questions about the platform, brainstorm strategy, and offer suggestions for future directions. We’d love this call to especially focus on connecting with
#MEAction has just launched a major new petition to get the US Department of Health and Human Services (HHS) to throw its considerable weight behind calls to The Lancet to have the notorious PACE trial independently re-analysed. The petition also asks the HHS to take immediate steps to protect ME/CFS patients both in the US
