Category: Actions

Put us on the map!

How many of us are out there with ME/CFS? Put yourself on the map so that we can show the world how many of us exist! Put yourself on the map using this website: diseasemaps.org. Simply search for Chronic Fatigue Syndrome/M.E., and then add your information. (Include name or not.) We can prove to our

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Light up the Night on May 12, 2016!

a may 12 project. The challenge is to get as many buildings as possible in your country to light up with one of the 3 colours used on May 12th – blue, purple or green. We want public buildings/places like City Halls, Niagara Falls and we want individual homes lit up too!

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‎Enter the #MillionsMissing‬ Poetry Contest 2016

#‎MEAction is seeking poems to honor those around the world struggling with M.E. This call to poets is designed to complement other awareness projects taking place during May. Our goal is to proudly display the creative resources of our community and to celebrate the courage it takes to speak out about the injustices and suffering we face on a daily basis.

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#MEAction Welcomes our new managing editor

We would like to welcome Jaime to our team at #MEAction as our new managing editor. With an MS, a freelance writing career, and a current teaching position in organic chemistry at the graduate level, Jaime comes to us with a background in writing, education, and science. An active member of Phoenix Rising for over

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FUNDRAISER: Please Donate to Anne's Surgery Fund

Anne LiConti is a member of the ME/CFS community who needs our help to obtain a life-saving surgery. Anne’s uterine fibroids have grown so large and numerous that her uterus is now the size of a 14-week pregnancy. This March, I was stricken with extreme complications: uterine hemorrhage from the fibroids. I started having orthostatic

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Keep PACE out of WebMD and HealthDay

Web MD, the largest online publisher of news and information regarding health and well-being, has released its “latest news” about ME/CFS in an article based on the discredited PACE trials. It asserts that “British researchers concluded that a form of talk therapy, called cognitive behavior therapy, and graded exercise therapy are among the best treatments for chronic fatigue.”

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Join this day of protest: May 25th

#MEAction is excited to announce its first protest in Washington DC! (Now rescheduled for May 25, 2016) Please join us May 25th for a protest outside of the Health and Human Services building in Washington DC. Our goal is to raise the visibility of this illness and the people living with it. Can’t make it to

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Ask UNSW To Cancel CBT/GET Training Study

Write to the University of New South Wales and ask them not to allow a trial to train health professionals in graded exercise therapy and cognitive behaviour therapy for chronic fatigue syndrome patients in Australia.

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