The Sleepy Girl Guide to Social Security Disability (U.S.)
April 17, 2017
6 Comments
Renegade disability guide for Myalgic Encephalomyelitis
Category: Actions
Global Call-to-Action: Help secure the World Health Organisation's Classification of ME & CFS
April 4, 2017
57 Comments
Urgent call to action! We need all hands on deck for a simple, but important task! The World Health Organisation (WHO) is reviewing its International Classification of Disease (ICD) for its upcoming 11th edition (ICD-11). There has been enormous concern about what was going to happen to how ME & CFS are classified in the new edition. It’s crucial that we take action now!
Three ways to help Unrest change the story
March 31, 2017
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1) Sign up Sign-up to receive Unrest email updates, so you know when the film is coming to a city near you, your family, or your friends! Help us use the film to create a circle of allies, build the movement to fight for equal treatment, and find a cure. 2) Get social Join the Unrest social
Support Tom's London Marathon campaign for ME Research U.K.
March 28, 2017
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On 23rd April, Tom Whittingham is running the London Marathon for ME Research UK.
Watch and share his fundraising and awareness video.
#MEAction plans virtual concert for May 6th: Submit your Art
March 28, 2017
17 Comments
Whether you are a musician, poet or puppeteer, expressing yourself through a body devastated by Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS) is suddenly an impossible feat – and an improbable opportunity. #MEAction is excited to announce the launch of a virtual concert called #Bedfest on May 6th to showcase the experience of living
URGENT: Call your U.S. congressperson: Sign the letter to stop NIH cut
March 27, 2017
4 Comments
President Trump is proposing to cut the National Institutes of Health (NIH) budget by $6 billion – or about one-fifth of the total agency budget. A cut to the NIH budget will almost certainly impact funding for biomedical research into Myalgic Encephalomyelitis (ME). Bipartisan members of Congress are circulating a letter that opposes this cut, and, instead,
Video: How to protect American healthcare
March 10, 2017
3 Comments
Housing Works is mobilizing people who want to fight for health care. Housing Works provided this webinar last month on how to protect and improve healthcare in the U.S. using a tactic called “bird-dogging.”
SF Bay Area: Get Stanford Some Healthy Controls!
March 7, 2017
2 Comments
If you live in the San Francisco Bay Area, or know any others who do, please consider asking them to donate blood to the Stanford Genome Technology Center as a healthy control. The blood will be used for multiple purposes, including in Ron Davis‘s ME/CFS research. If you know individuals who are happy to help
Join the webinar tomorrow: 6 Ways to Maximize Your Congressional Impact.
March 1, 2017
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Join SolveCFS for their first advocacy webinar on “6 ways to maximize your congressional impact.” Thurs., March 2, 10-11 a.m. PST SMCI Advocacy and Engagement Manager, Emily Taylor, will lead the webinar, which is the first in Solve’s advocacy webinar series: “Power to the Patients.” To register for the free webinar, go here: http://bit.ly/2ln3dIO
Thank Senator Markey for promising to help ME patients
February 26, 2017
16 Comments
On Thursday, Feb. 23, I attended a packed town hall meeting in Northampton, Massachusetts with my U.S. senator, Ed Markey (D-MA). Around 1,400 constituents were present in both the main auditorium and the overflow room where the event was live streamed. I was one of the few who got to ask a question. I asked