Author: #MEAction

New Potential Cause of ME Found

New potential cause of ME found. Research found that Important signalling mechanisms are disrupted with receptors in the brain, gut, cardiovascular and immune systems. Research findings will be presented at the end of May 2015. Read more…

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Crowd funding for The OMF ME/CFS Severely Ill Big Data Study

As part of our OMF End ME/CFS Project, this study will conduct a comprehensive, “Big Data,” analysis on severely ill ME/CFS patients with the goal of finding sensitive  and distinctive molecular biomarker(s). Very little research has been done in the bedbound. severely ill patients because they are hard to reach. By looking at the simple

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ME Awareness at the Brighton Wheel and Brighton Sea Life Center

  The Brighton Wheel and the Brighton Sea Life Centre were lit up blue last night in support of ME Awareness. A group of ME Mums and Dad’s held posters from Action for ME for photographs that will be published along with an article on ME in the Argus newspaper. The photos were also circulated

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More NIH Funding Needed for ME/CFS Research!

According to the recent Institute of Medicine report, up to 2.5 million Americans have chronic fatigue syndrome (ME/CFS). Patients with ME/CFS are more functionally impaired than those with other disabling illnesses, including congestive heart failure, multiple sclerosis, and end-stage renal disease. The NIH funds ME/CFS at $5 million per year, and that amount is estimated by

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The $10 Challenge For Columbia CII ME/CFS Research

The Microbe Discovery Project began as a patient-driven crowdfund to raise funds for world-class researchers Dr Ian Lipkin and Dr Mady Hornig at Columbia University’s Center for Infection and Immunity (CII), New York. Research into ME/Chronic Fatigue Syndrome is sorely needed and there is a paucity of research into the illness. Patients raised a whopping

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Spain hologram protest

Activists in Spain, after a new gag law curtailed the freedom to protest in front of Congress or parliament buildings, staged what may be the world’s first hologram protest. Holographic projection opens up a whole new world of possibilities for how to bring to the outside world the images, voices, and stories of patients who are to ill to physically engage

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Fund Mike's North Pole Marathon

Running a 26.2 mile marathon at the north pole for IiME This is the challenge of a lifetime and it is the result of my daughter having ME since September 2008. I have seen firsthand how damaging ME can be to a person’s life, their prospects and their family.   Support Mike’s marathon and raise

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Scientists find clues into cognitive dysfunction in chronic fatigue syndrome

A unique pattern of immune molecules in the cerebrospinal fluid of people with myalgic encephalomyelitis/chronic fatigue syndrome have been discovered, providing insights into the basis for cognitive dysfunction –frequently described by patients as ‘brain fog’– as well as new hope for improvements in diagnosis and treatment. Read more here

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