Live Webcast – Dr Lipkin and Dr Hornig take the #ChilliMEchallenge
June 17, 2015
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Tune in to the LIVE webcast on July 1st, 1:00PM EST and watch Dr Ian Lipkin and Dr Mady Hornig take the #ChilliMEchallenge!
Author: #MEAction
Ian Lipkin and Mady Hornig respond to the #ChilliMEchallenge
June 17, 2015
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Researchers at Columbia CII have taken on the #chilliMEchallenge – and they just made it a whole lot spicier! The #chilliMEchallenge hit ME/CFS social media by storm. Four young women with ME/CFS got together and issued a fun challenge — to eat a hot chilli or donate to ME/CFS research at Columbia — throughout our
UPDATE: OMF's END ME/CFS Severely Ill Big Data study nearly 1/3 to target!
June 17, 2015
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We have our next update on END ME/CFS’s Big Data study of severely ill patients and the sum raised so far is an amazing $103,840, from 235 donations.
The NIH talks ME/CFS: The P2P Workshop Report
June 17, 2015
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The National Institutes of Health have released the results of their 1.5 day workshop on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. The full P2P workshop abstract is available online but some of the most interesting and important points are excerpted below. Leave a comment and tell us, what do you like about the report? What don’t you
UPDATE: #MEAwarenesshour reaches beyond Myalgic Encephalomyelitis Patients
June 15, 2015
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#MEAwarenesshour uses Twitter to reach beyond the ME/CFS patient community From the organizer, Amanda Carroll: The 10th of June #MEawarenesshour: only our second ME awareness hour and what a success! There was a great response, hundreds of tweets and it turns out that doctors, pharmacist and health workers around the world tuned in to read
Living with ME Radio interview
June 15, 2015
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Radio Interview about living with ME on RTE – The Irish National Radio station After the article about living with ME/CFS was posted in the journal.ie I was invited to do a radio interview along with Sarah Meehan who is also living with ME [button_color url=”http://www.rte.ie/radio/radioplayer/rteradiowebpage.html#!rii=9%3A20794540%3A15036%3A10%2D06%2D2015%3A” content=”Listen to the full interview” target=””] Best wishes to all.
Into the Light – An Artist book in a box, by Corina Duyn
June 13, 2015
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The Artist book consists of a set of loose A5 sheets, gathered in a custom-made wooden box, reflecting on life with chronic illness seen through art and nature.
The Well Made Project – A Sense of Unexpected Events
June 9, 2015
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Online art and health exhibition featuring extracts from “The State of ME” As part of London Creativity and Wellbeing week 4-12 June, The Well Made Project is hosting an online exhibition called A Series of Unexpected Events. ‘Over the course of a week, this online exhibition on art and health will publish an artwork by
Help 6000 ME/CFS sufferers in New Zealand get a field worker
June 7, 2015
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We humbly ask for the community’s help to fundraise for a field worker in Auckland, New Zealand. We hope to set a precedent for the international community, providing a platform for other countries to campaign for their own field workers
Virscan: 1 Test for every virus that has ever infected you
June 4, 2015
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Excerpted from Science and Popular Science A new test called VirScan would allow a patient to be tested for hundreds of viral infections at the same time. “To see if a patient has ever been infected by a particular virus, researchers expose antibodies in the patient’s blood to molecules with the virus’ molecular signature. In