#MEAction, Author at #MEAction Network

Suffering the Silence Campaign for M.E.

August 9, 2015 No Comments

Write “M.E.” on your left hand or forearm (if you do not want to use marker on your skin, you can improvise with a piece of paper as many have done). Cover your mouth with your hand and make sure to look into your camera lens. Upload to Twitter or Instagram with the hashtags: #sufferingthesilence #MEAction and #severeme. If you are on Facebook, you will need to post to The #MEAction Network page AND use the hashtags above.

Four ways to Observe Severe ME Awareness Day

August 8, 2015 2 Comments

Saturday, August 8th is Severe ME Day. It is a day of awareness raising for those suffering severe myalgic encephalomyelitis as well as a day of remembrance. August 8th was the birthday of Sophia Mirza, a 32 year-old woman who died of ME. Here are three ways you can observe the day: 1) Join the Twitter

Send a letter to Reinstate CDC Funding for ME/CFS

August 8, 2015 20 Comments

We at the Solve ME/CFS initiative are calling for the CDC to reinstate funding for ME/CFS and we need your help! Please act now! The $5.4 million in CDC funding for ME/CFS has been stricken from the Senate’s version of the 2016 federal budget. As you can see from the graphic below, ME/CFS was the only

OMF Severely Ill Patient Study Gets $500,000 donation

August 7, 2015 6 Comments

[pullquote align=”right” cite=”” link=”” color=”” class=”” size=””]Very little research has been done in the bedbound patients “Hopefully, the more severely ill will have a stronger signal of what’s going wrong.”[/pullquote] The Open Medicine Foundation’s Severely Ill Patient Big Data study has gotten a HUGE boost with the help of an anonymous donor. This $500,000 donation will

Sign a petition to Reinstate Federal Research Funding for ME/CFS

August 7, 2015 No Comments

Help Find a Cure for Whitney Dafoe and others like him!
Hearing that funding has been reduced to nothing is heartbreaking. Please hear out these words from something who is suffering, and help him:

Take the funding equality petition to the streets

August 6, 2015 1 Comment

The US funding equality petition has over 4,000 signatures. We still have a lot of work to do to get to our goal of 50,000 signatures nationwide. As we learned from the Dutch campaign, the only way to get to get large numbers is to take the petition into the streets. Help us increase signatures for

UK Equality Act: share your view

August 6, 2015 No Comments

Has the Equality Act helped prevent discrimination against people with M.E. in the UK? Share your views and experience in Action for M.E.’s short survey.

Thank you DePaul! #ChilliMEchallenge for #MEAction

August 3, 2015 No Comments

Leonard Jason and the DePaul Research team’s #ChilliMEchallenge supporting #MEAction Thank you to the entire team at DePaul’s Center for Community Research for your incredible work for ME/CFS patients around the world. And thank you for choosing #MEAction for your donation. The #MEAction team is so grateful for your support! Check out the DePaul #ChilliMEChallenge

CDC – Public Health Promotion of Chronic Fatigue Syndrome

August 3, 2015 No Comments

The CDC wants information from businesses about producing public radio/audio recordings to increase ME/CFS awareness
Deadline: Aug 05, 2015 4:00 pm Eastern
Objectives:
The goal of this work is to increase awareness of CFS through the use of public radio/audio recording. The specific objectives are to 1) produce radio/audio recording, 2) produce segments that are broadcast on NPR’s Morning Edition and on the NPR website; and 3) increase awareness of CFS and further facilitate the support of loved ones and society as a whole to improve the quality of life for patients with CFS.

August 8 – Severe ME Day Twitter Storm

August 3, 2015 6 Comments

let’s get the word out august 8!!

Author: #MEAction