CDC Funding Update from SMCI
October 18, 2015
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SMCI Meets with Senate Appropriations Staff The Solve ME/CFS Initiative has posted an
Author: #MEAction
Donate To Help The OMF Raise $33.3K By December 1!
October 16, 2015
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The Open Medicine Foundation has just begun a fundraising campaign to raise $8.3K in donations and have it matched 3:1, which will result in $25K + $8.3 = $33.3K!
Tell Congress to Support Myalgic Encephalomyelitis Funding Equality
October 15, 2015
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In the US? Find your state and sign the petition. Not in the US? Sign the global solidarity petition. Share your story, tell congress why we need Mylagic Encephalomyelitis Funding Equality.
Neurology Now writes about CFS
October 12, 2015
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Neurology Now on CFS Neurology Now recently posted an article targeted at neurologists with the headline “Beyond Tired: Is chronic fatigue syndrome a real medical condition? Yes, according to a report from the Institute of Medicine, which urges physicians to treat it accordingly.” The piece is primarily focused on the IOM report and its suggested
Crowdsourcing information for a pharmacy M.E. resource
October 12, 2015
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I’m working with a national M.E. charity, Action for M.E., as their Volunteer Pharmacist, providing information about pharmacy services, writing health and pharmacy-related articles, and putting together a resource for pharmacy professionals about M.E. I’m gathering thoughts and suggestions from both people with M.E. and pharmacy professionals because it’s important that the resource includes a full picture of M.E.
UK CMRC conference on October 13 and 14
October 11, 2015
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UK CMRC conference to be livestreamed on 13 and 14 October Parts of this year’s UK CFS/ME Research Collaborative (CMRC) international conference, which will be held in Newcastle on Tuesday the 13th and Wednesday the 14th of October, will be livestreamed by the charity Action for ME. The conference has a full two-day agenda of
Push to change ME/CFS NICE guideline
October 10, 2015
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Minutes just released for the 15 July 2015 meeting of the cross-charity Forward-ME group record a discussion with Dr Martin McShane of NHS England on getting him to recommend that the NICE guideline on ME/CFS should be revised. The guideline, which should be based on the best available scientific evidence, and which is followed by
The Atlantic publishes a nuanced push for public funding
October 9, 2015
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The Tragic Neglect of Chronic Fatigue Syndrome With a surprisingly broad-ranging and detail-rich article by Olga Khazan entitled “The Tragic Neglect of Chronic Fatigue Syndrome,” The Atlantic became the latest national publication to inform its readers about the severity of disease impact, dearth of medical understanding and treatment, lack of public awareness, and abysmally low
Vote DAILY For National ME/FM Action Network To Win $100K In Aviva Contest For Research Of ME And FM!
October 5, 2015
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Vote DAILY between October 6-23, 2015 in the Aviva contest to help the National ME/FM Action Network in Canada win up to $100,000 for research of ME and FM.
Poll: Should #MEAction sign this NIH Letter?
September 26, 2015
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Bob and Courtney Miller are writing a letter to Francis Collins, Director of the National Institutes of Health (NIH) and Sylvia Burwell, US Secretary of Health asking that the NIH: Assign ME/CFS to a strong, well-funded Institute like NINDS, to enable strategic planning and structural accountability. Fund a mix of intramural and extramural research (as NIH does for