Julie Rehmeyer on Science and ME/CFS Julie Rehmeyer, an award-winning science and math writer, was recently interviewed about how her experience with ME/CFS has affected her perspective on science. The insightful piece ranges from a discussion of how the CDC’s treatment of ME/CFS has lessened her trust of institutions of science to how her experiences have
MedPage Today Focuses on Need for Recognition of ME/CFS and Research Funding MedPage Today, a news site for medical workers, published an article about ME/CFS that mentions the #MEAction campaign to increase federal research funding. The article gathered quotes from top ME/CFS researchers Leonard Jason and Lucinda Bateman, and it summarized the findings of the recent
The UK CFS/ME Research Collaborative People with M.E. need better treatment and support. This can only be achieved through increasing the quality of research; by coordinating a stronger collaborative approach to stimulate more research through bringing in expertise from outside the field and supporting early stage career researchers; and by working strategically to increase funding
Blogger Help us write news and opinion content for #MEAction and join a vibrant community of patient activists. Description: #MEAction’s volunteer bloggers develop their own stories and write content ideas suggested by the MEAction team. We are looking for folks who can write on any topics but are especially interested in covering science and policy. We
Community organizer Help us organize and expand the capacity of the ME community. Description: #MEAction’s community organizer is responsible for grassroots community building, outreach to volunteers, local #MEAction groups and ally organizations; and developing programs for patient education and empowerment. Skills: Strong interpersonal skills, team building skills, and ability to talk on phone a moderate amount. Knowledge
Editor Help us develop and coordinate a strategy for a more informed ME community. Description: #MEAction’s editor is responsible for writing content, developing new stories, editing and approving volunteer submissions, recruiting new writers, coordinating content flow, and implementing editorial standards and priorities Skills: Strong written and organizational skills. Knowledge of the ME community. Comfort with science
Bestselling Author John Connolly’s Latest Novel Features Girl with ME/CFS “I know some people with ME, and tried hard to get it right.” John Connolly If like me you are a fan of thrillers – especially ones with a more than the unusual twist – then you probably don’t need me to introduce the almost
It will take more than people with ME/CFS to achieve a world free of ME/CFS. It will take a committed team of many rallying together to effect change – Families, loved ones and friends coming together to make a difference and fund progress. Join Team Solve and help us Solve ME/CFS!
We’re proud to announce that our new partnership with Tugg is now LIVE! Tugg is a “theatrical-on-demand” platform that gives documentary fanbases like ours access to 90% of the movie theaters in the United States. Tugg helps you book a movie theater near your home, advertise, sell tickets, and stage a high-caliber screening to build
