Author: #MEAction

Centre for Welfare Reform criticises PACE trial

The Centre for Welfare Reform has published a 64-page report criticising the PACE trial and relating the study to the debate over welfare reform and cuts to disability benefits in the UK. The report’s author, George Faulkner, discusses how the biopsychosocial model has helped create a climate in Britain in which the sick are seen

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The UK CFS/ME Research Collaborative to livestream AGM on 27 April

The 2016 Annual General Meeting of the UK CFS/ME Research Collaborative (CMRC) will be livestreamed on Wednesday 27 April, from 2.45 pm to 3.30 pm British Summer Time. Viewers must preregister. The agenda of the AGM is as follows: Welcome and apologies Annual report 2014-15 Charter revisions/approval Plans for 2015-16 Membership of the Board Any other business

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British doctor known for defending children prohibited from treating ME patients

On 20 April, the UK’s General Medical Council (GMC) imposed limits on the medical license of Dr Nigel Speight, well known for his work in protecting children with ME/CFS against inappropriate psychological intervention and removal from their families. The limits come after a complaint from Esther Crawley, medical advisor to the Association of Young People with ME.

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Light up the Night on May 12, 2016!

a may 12 project. The challenge is to get as many buildings as possible in your country to light up with one of the 3 colours used on May 12th – blue, purple or green. We want public buildings/places like City Halls, Niagara Falls and we want individual homes lit up too!

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‎Enter the #MillionsMissing‬ Poetry Contest 2016

#‎MEAction is seeking poems to honor those around the world struggling with M.E. This call to poets is designed to complement other awareness projects taking place during May. Our goal is to proudly display the creative resources of our community and to celebrate the courage it takes to speak out about the injustices and suffering we face on a daily basis.

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Keep PACE out of WebMD and HealthDay

Web MD, the largest online publisher of news and information regarding health and well-being, has released its “latest news” about ME/CFS in an article based on the discredited PACE trials. It asserts that “British researchers concluded that a form of talk therapy, called cognitive behavior therapy, and graded exercise therapy are among the best treatments for chronic fatigue.”

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