In Memory of Tom Jarrett
July 28, 2016
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I met Tom Jarrett once, and I remember him through an empty chair.
Author: #MEAction
ME in Poland: Help me raise awareness & funding all across the EU
July 27, 2016
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Hi, I’m Mike Harley from the UK, and for the last 18 months I’ve been raising awareness and funds for the biomedical research charity Invest In ME. One of my best friends has had ME for over 10 years and over the last 2 years I’ve met a number of other patients who are now
Introducing Blue Ribbon Fellow: Kristina Gemayel
July 26, 2016
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The Blue Ribbon Foundation, the non-profit behind the documentary Forgotten Plague, has an educational and research agenda. In addition to getting the film in front of as many people in the medical and health profession as possible, one of the primary programs they have created is a student fellowship for medical students to assist in top
Introducing the Seed Grant Ramsay Award Program
July 25, 2016
2 Comments
The Solve ME/CFS Initiative (SMCI) is now accepting applications for the Ramsay Award Program in basic, preclinical, clinical, and epidemiology research. This competitive grant award is open to scientists and researchers at any career stage who are interested in studying myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS).
#MEAction Policy Change: ME, not ME/CFS
July 24, 2016
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The staff of #MEAction, who run the communications platform that is our website, social media channels, and email list, have decided to adopt ME or myalgic encephalomyelitis for future communications about the disease, except where the name CFS or Chronic Fatigue Syndrome needs to be mentioned for the sake of clarity and to effectively communicate
US: Attend the #MillionsMissing USA call this Sunday!
July 22, 2016
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This Sunday at 4pm ET, US organizers for the September #MillionsMissing protests will be meeting together to plan, mobilize, and connect with other protesters. Those who have volunteered to lead a city protest are highly encouraged to attend; those just wanting to learn more about the protests are also very welcome. If this is the
Contribute clips to L.A.'s #MillionsMissing Video
July 21, 2016
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Last October, I released the short documentary The Last Great Medical Cover Up to a widely receptive audience. Now, I am looking to alter and expand the film in time to promote Round 2 of the groundbreaking #MillionsMissing movement. And I need your help to make this new and improved version a reality. Individuals living
Medical Textbooks Earn a Failing Grade in ME/CFS – 2 of 2
July 19, 2016
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Note: This is a two-part article in our series on education in ME/CFS. Part 1 covered UpToDate, the University of North Texas, Michigan State University, and the University of Nebraska; Part 2 covers the University of California–San Francisco, the University of North Carolina, and other best sellers. To read Part I of this article, click
2016 Invest in ME Conference write-up on PR
July 18, 2016
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Phoenix Rising’s Mark Berry was at the recent Invest in ME conference and has written an excellent report: A New Decade of ME Research: The 11th Invest in ME International ME Conference 2016 As the article is quite long, here are some tasters (my summaries, with quotes from Mark’s article) to whet your appetite for
Send Dr. Ron Davis a 75th birthday message!
July 15, 2016
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The Open Medicine Foundation (OMF) is inviting patients and supporters to send Dr. Ron Davis a message for his birthday and a donation to support his End ME/CFS Project. The OMF said that the messages would be compiled into a “massive card” that would be presented to him. Dr. Davis, of Stanford University, will be