#MEAction, Author at #MEAction Network

Atlanta Residents Rally to Raise Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

September 24, 2016 No Comments

MEDIA ADVISORY FOR: Tuesday, September 27, 2016 CONTACT: Madison Donzis | [email protected] | (210) 488-6220 TUESDAY 1PM: Atlanta Residents Rally to Raise Support for Patients Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Thousands Worldwide Join an International Day of Action Urging Public Health Officials to Ramp Up Funding for ME/CFS Research, Clinical Trials and

Protests Across the UK Highlight the Lack of Support for Patients Suffering from Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

September 24, 2016 No Comments

MEDIA ADVISORY FOR: Tuesday, 27 September, 2016 TUESDAY: Protests Across the UK Highlight the Lack of Support for Patients Suffering from Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Thousands Worldwide Take Part In International Day of Action Urging Government Officials to Ramp Up Funding for ME/CFS Research, Clinical Trials and Education On Tuesday, September 27th, hundreds

Thousands Protest in 24 Cities Worldwide Demanding Support for People Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome

September 24, 2016 No Comments

MEDIA ADVISORY FOR: Tuesday, September 27, 2016 CONTACT: Brett Abrams | +1-516-841-1105 | [email protected] 09/27: Thousands Protest in 24 Cities Worldwide Demanding Support for People Suffering with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome #MillionsMissing International Day of Action Urges Public Health Officials to Ramp Up Funding for ME/CFS Research, Clinical Trials and Education Myalgic Encephalomyelitis

MillionsMissing/MillonesAusentes, únete a la protesta en español

September 23, 2016 2 Comments

This is a blog created by spanish-talking pwme to spread the knowledge about ME/CFS and increase activism. Este es un blog sobre SFC/EM en español para visibilizar la enfermedad y aumentar el activismo!

Join us in the #isignedfive challenge!

September 23, 2016 No Comments

Want a way to raise your voice this #MillionsMissing but don’t know how? Perhaps you’re unable to attend a protest in person, or want to do a little something extra to make a difference. The stopGET petition against graded exercise therapy trials is one of the most vital actions circulating at the moment. With a

US: #MillionsMissing Protest Demands

September 22, 2016 7 Comments

Overview Ahead of the May 2016 #MillionsMissing protests, members of the US protest steering committee drafted a set of demands to the US government relating to research and medical treatment for ME. After the protest, we solicited broader community feedback via an online survey, which was completed by 191 respondents. The survey demonstrated overwhelming support

The PACE Trial Fiasco

September 22, 2016 5 Comments

This study is the worst kind of science, and noticing flaws does not mean we are sociopaths or psychopaths. Neither does it mean we’re close-minded members of a group that’s only interested in our own views.

Patients’ reanalysis sinks PACE’s “recovery” claims

September 21, 2016 2 Comments

Patients and statisticians have used the recently released data from the PACE trial to show that cognitive behavioural therapy and graded exercise therapy did not help patients in the study to recover. Alem Matthees, an Australian patient who obtained the data after a two-year battle over his Freedom of Information request, applied the study authors’

A Plea for Decency to White, Chalder & Sharpe

September 21, 2016 1 Comment

The time for decency in the face of the overwhelming failure of PACE for many has justifiably passed you by, but potential futility aside, I make this appeal regardless. Every day there is a new ME/CFS patient. Today you can spare that patient from harm. You can spare them from being accused of malingering by their own friends and family. You can spare them from wrongful imprisonment in a psychiatric ward. Today you can set ME/CFS research on an expedited path that leads to real treatments and ultimately a cure. End this tragedy now.

Join the MILLIONSMISSING Chicago Protest/Day of Action

September 20, 2016 No Comments

The Chicago protest #MillionsMissing will feature talks by Dr. Leonard Jason, Dr. Marcie Zinn, well-known epidemiologists; Carol Head, of Solve ME/CFS; Barbara Morrison; ME/CFS patients; and families and friends. It will take place at the James Thompson Center, 100 W. Randolph St, Chicago between 11:30am-12:30pm. Please click below to attend, learn more and donate to

Author: #MEAction