#MEAction, Author at #MEAction Network

#MEAction Denounces Use of CBT in Treatment for Chronic Fatigue Syndrome

November 2, 2016 3 Comments

FOR IMMEDIATE RELEASE: Wednesday, November 2, 2016 CONTACT: L.A. Cooper |[email protected] and [email protected] #MEAction Denounces Use of CBT in Treatment for Chronic Fatigue Syndrome Patients with ME/CFS Urge NHS to Adopt Scientifically-Sound Approaches to Treatment Study Finds No Difference in Treatment for ME/CFS Patients At Long-Term Follow-Up According to reports in The Guardian and

Watch the Bateman Horne Center Meeting Livestream

October 26, 2016 No Comments

Lucinda Bateman, MD, BHC Founder and Medical Director, is engaged in thought leadership discussions on ME/CFS and FM across the globe, traveling to several conferences in Oct. At this meeting she will will recap the information, insights, progress and promise.

New Research Project Launches through SMCI’s Targeted Initiative Research Program

October 25, 2016 1 Comment

SMCI recently launched a new partnership as a component of our targeted initiative program, within our Pathways and Biomarkers Discovery Track. The project consists of original research in the areas of bioenergetics, metabolomics, and lipidomics using high-throughput technology. Importantly, this new SMCI research project relies on blood from well-qualified patients from The Levine Clinic; it also builds on recent discoveries in gut microbiome from Dr. Maureen Hanson’s lab, which uses these same patients.

Cast your vote today help fund epigenetic research for ME

October 25, 2016 No Comments

Action CIND is competing in the Aviva contest for $100,000 to advance ME and FM research in Canada. REGISTER at http://avivacommunityfund.org, CAST 18 VOTES TODAY at https://avivacommunityfund.org/voting/project/view/16-356, and SHARE contest information to help them.

#MEAction Network UK's polling results for the proposed MEGA study

October 24, 2016 3 Comments

Last week, we asked for your thoughts on the proposed MEGA study. The poll ran for 5 days and 154 of you lent your voice to the concerns raised by many. Here are the results of the vote: “The study must include severely and moderately affected patients.” 140 of 154 voted this. (90.9%) “Those researchers/advisors

The NIH Will Issue Two New RFAs for ME Research

October 24, 2016 No Comments

It has been nearly five years since the National Institutes of Health (NIH) last released a funding opportunity for Myalgic Encephalomyelitis (ME) research.

#MillionsMissing Crafts Competition

October 24, 2016 2 Comments

#MillionsMissing Crafts Competition We want to have fun while we work for equal treatment for ME sufferers! Win prizes! Submit photos and pattern of a crochet – or knitting project with the #MillionMissing logo. ( Also with a picture of the finished product). We pick three winners receiving a prize and they will be the designers behind #Millionsmissingnorway ‘s official patterns.

No more 'should': the aim to stop punishing myself for having ME

October 15, 2016 5 Comments

Have you ever noticed how so many of us beat ourselves up for having this chronic illness, almost as if it is invisible even to us, even as we feel the pain and exhaustion? While we feel the need to not give up and keep a hold of all we can of our lives, I’m becoming aware that I for one often get this fight tangled up with a lot of damaging self-judgement.

#MillionsMissing Holland protest  against social exclusion

October 13, 2016 No Comments

Worldwide protest of patients with ME against social exclusion After being ignored for years and being excluded from participation in society, ME patients have had more than enough of it. With a virtual march on social media and demonstrations from America to Australia patients call for recognition of their disease and demand care and research.

Increasing Efficacy of the CDC’s ME/CFS Educational Program

October 13, 2016 4 Comments

INTRODUCTION The Centers for Disease Control (CDC) is revising and creating new educational materials for its Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) educational program. The hope is that this fourth try at producing ME/CFS educational materials will result in equality of care for ME/CFS patients and they will, for the first time, experience appropriate care throughout

Author: #MEAction