#MEAction Calls for ME & Long COVID to be Part of COVID-19 Task Force
July 25, 2023
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Urge Congress to hold our federal health and research agencies accountable for ME & Long COVID.
Author: #MEAction
#MEAction & Body Politic: We Are Stronger Together
July 20, 2023
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Announcing #MEAction and Body Politic’s new collaboration: we are excited to announce that #MEAction will now host Body Politic’s advocacy work as a project of #MEAction. Many of you know that Body Politic’s support group has officially closed. This was a devastating loss to the community – we know so much of the Long COVID
MEAction UK submits a rapid response to the JNNP in support of NICE.
July 12, 2023
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Below is the text of MEAction UK’s rapid response submitted to the JNNP article that was published 10th July 2023. In the article ‘Anomalies in the review process and interpretation of the evidence in the NICE guideline for chronic fatigue syndrome and myalgic encephalomyelitis’ published in the Journal of Neurology, Neurosurgery & Psychiatry on 10th
MEAction UK’s response to the Guardian article 11 July 2023
July 11, 2023
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MEAction UK is preparing a detailed response to the latest published paper attacking the NICE Guideline on ME/CFS. In the meantime this is the response sent to The Guardian in reply to their article covering the publication. MEAction UK was shocked to read the article ‘ME/CFS guidance that discourages exercise is flawed, say researchers’ published
Severe ME Artists Project 2023
June 30, 2023
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#MEAction is thrilled to announce our Severe ME Artists Project 2023 that will feature work from those within the severe ME community and will be in recognition of Severe ME Day on August 8th! This project will be an opportunity for those with severe ME to showcase your artwork, whether it be writing, photography, drawing,
Staff Share Their First-Hand Experiences from #MillionsMissing 2023
June 28, 2023
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While we are busy working to create a new online experience to highlight all the images and speeches from #MillionsMissing 2023 at the Washington Monument, we wanted to share with you some first-hand, touching experiences from the staff who were there. Each #MillionsMissing has had something special to offer and this year’s surpassed expectations with
Why We Keep Telling the Story of ME to the Press
June 6, 2023
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Our press work continues to drum a strong beat as we tell the story of ME everyday to the media. We will continue to fight for our community’s decades of expertise living with, treating and researching ME to be heard, and integrated into our government’s Long COVID response. We refused to be erased from the
Long COVID & ME/CFS Communities to Demonstrate TODAY on National Mall
May 12, 2023
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Washington, DC – The ME/CFS and Long COVID communities will demonstrate today with the installation of 300 cots on the National Mall to represent the millions of people missing from their lives due to post-infectious disease. We are the #MillionsMissing.
Creative Fundraising Initiatives for #MEAction
May 1, 2023
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Calls for immediate public release of RECOVER’s clinical trial design
Woman with Severe ME and EDS starving to death in NHS hospital
February 22, 2023
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UPDATE: We want to provide a brief update on Sami Berry’s case and what she needs help with now. The situation in hospital reached the point that Sami decided she had to self-discharge to try and stay alive. She is at home with a Percutaneous Endoscopic Jejunostomy (PEJ ) tube but she needs treatment with