#MEAction, Author at #MEAction Network

21st Century Cures Act Passes House with Overwhelming Bipartisan Support

December 11, 2016 1 Comment

21st Century Cures Act Passes House with Overwhelming Bipartisan Support ME/CFS advocates have been eagerly awaiting passage of the 21st Century Cures Act since it was initially introduced in 2013, given it was originally written to increase NIH funding and fast-track research and treatment development. On Wednesday, November 30, a compromise bill with modified provisions from the original 21st Century Cures Act swept the House… READ MORE

New study on CFS/ME in adolescents in Spain: We come in PACE

December 10, 2016 1 Comment

This is the “new” studie some doctors are trying to move around Spain with the recomendations of using CBT and GET in patients of CFS at the age range of 12-17.

#SockItToMECFS with BHC's new fundraising challenge!

December 9, 2016 2 Comments

Bateman Horne Center launches the #SockItToMECFS Challenge. Wear your wildest and wackiest socks to raise awareness and funds for advancing ME/CFS diagnosis and care. Challenge your friends to do the same.

Ramsay Award Winners and Webinar with Dr. Zaher Nahle

December 9, 2016 No Comments

Do you have questions about ME/CFS research? Two weeks from today, the last webinar of this year will be held on December 15th with Zaher Nahle, PhD, MPA, vice president for research and scientific programs at Solve ME/CFS Initiative. Send your questions about upcoming research programs to [email protected] To sign up for the webinar visit: https://attendee.gotowebinar.com/register/2743000415077341956

Join the #MillionsMissing Art Competition Part-Two

December 3, 2016 4 Comments

We’re excited to announce the #MillionsMissing Art Competition, open to all art forms, with submissions due by Jan. 6, 2017. For all you artists itching to create your own #MillionsMissing art, now is your chance to take a crack at it and win a prize doing so. The craft competition was so popular that we

#MillionMissing Activists Meet with HHS for Follow-Up

December 2, 2016 3 Comments

As reported in the August 5 update on the meeting between HHS and advocates for ME on August 1, Assistant Secretary of Health Dr. Karen DeSalvo had committed to follow up on specific actions and meet again in October. On October 24, Jen Brea, Terri Wilder, Carol Head, Jennie Spotila, and Mary Dimmock met again

Thoughts on NIH speakers from Dr. Zaher Nahle

November 15, 2016 6 Comments

It was truly unsettling to learn about the news of an invited speaker lecturing at the National Institutes of Health (NIH) on November 9, 2016. For decades, the speaker has been a staunch adversary of studying the pathophysiology of ME/CFS and refuses to acknowledge its root cause. I have written many times previously, including in an editorial in March of this year, on the aftermath of the revitalization of the Trans-NIH ME/CFS Working Group—specifically on the perils caused by what I then called “ME/CFS deniers” and “psychosomatization sympathizers.” We will not dedicate additional time to these individuals or elaborate on their misguided theories on our pages other than to make the following three points…

Dr. Komaroff’s Webinar Provides Hypothesis, Hot Research and Hope

November 12, 2016 1 Comment

Dr. Komaroff’s Webinar Provides His Hypothesis, Hot Research and Hope Link to webinar: https://youtu.be/ENrdrGj0p-c by Darla N. In a webinar the Solve ME/CFS Initiative hosted on Nov. 10, Dr. Anthony Komaroff presented his hypothesis on ME’s cause and five popular areas of current ME research. Komaroff, Simcox-Clifford-Higby professor of medicine at Harvard Medical School and senior

Update on Shorter's Presentation at NIH

November 9, 2016 2 Comments

We have some quick updates on the planned NIH talk by Dr. Edward Shorter, a well-known ME denier and history professor. –NIH has refused to budge despite the near-universal community outcry, numerous letters to both NIH and congressional leaders, and Dr. Davis telling NIH he will demand a Congressional investigation if this goes forward. —

Shorter invited to NIH to share perspective of disease denialism

November 4, 2016 13 Comments

On Thursday, November 3, Dr. Maureen Hanson shared a screenshot revealing a planned talk on November 9th at the NIH by the historian Dr. Edward Shorter titled “Chronic Fatigue Syndrome in Historical Perspective.” Dr. Shorter has a long history of treating patients with ME with disdain and denial, as illustrated in an article he wrote for

Author: #MEAction