Press Release Details of the Event Millions Missing Edinburgh protest is being held from 1200-1400 on Friday 12th May outside the Scottish Parliament to raise awareness of Myalgic Encephalomyelitis (ME – sometimes called Chronic Fatigue Syndrome) and the devastating impact it has on tens of thousands of people in Scotland. Protests are being held in
#BedFest is an international art, performance and music festival created by people with Myalgic Encephalomyelitis
When you see a media representation of someone suffering with Myalgic Encephalomyelitis (also called Chronic Fatigue Syndrome), do you feel that you are being represented? Do you see your face when you see photos of people with ME or CFS in the media? “Who can become ill with ME/CFS? Most of us can answer that
If you missed the teach-in last week on Non-Violent Direct Action with Terri Wilder and Alexis Danzig, check out the webinar here.
Renegade disability guide for Myalgic Encephalomyelitis
On Thursday, April 20, Solve ME/CFS Initiative (SMCI)‘s research webinar series will be a double feature with Dr. Susan Levine and Dr. Jose Montoya at 10 a.m. PT/ 1 p.m. ET. Dr. Levine is founder of the Medical Office of Susan M. Levine, MD. Over the last two decades, Dr. Levine has collaborated with other clinicians and
Biomarkers are a holy grail for ME/CFS because they have the potential to help diagnose disease, track disease progression or progress and help inform which treatments might help. The need for biomarkers is immense and researchers will identify many possible ones. It is encouraging that there have been more possible biomarker reports recently. It can be so hard
How would the proposed NIH and CDC Budget Cuts affect ME research? News organizations recently reported that President Donald Trump’s administration has asked the House and Senate to approve budget cuts for 2017 of $1.232 billion for the National Institutes of Health (NIH) and $314 million for the Centers for Disease Control and Prevention (CDC).
Join us for a presentation and discussion on non-violent direct action with Alexis Danzig* and Terri Wilder on Sunday, April 16th at 3 pm EST (U.S.) / 9 p.m. London time. The call will run for 90 minutes and is geared towards a global audience. New and seasoned activists are highly encouraged to attend; those just
The National Institute of Health’s RFA for ME/CFS Collaborative Research Centers breaks new ground. For the first time, the funding agency is strongly encouraging researchers “to establish partnerships with patients groups and solicit their input” as part of their research plan. #MEAction assembled a team of volunteers to assist researchers in thinking about this, and
